The last three days have been a roller coaster ride for our family. One minute Logan’s counts are wrong, the next everything looks great, then we get a call last night that they did not collect enough stem cells. So instead of day off, back to hospital at 8am (traffic up at 5am). We need to remind ourselves Logan is in experimental treatment and nothing is by the book anymore. This morning Logan and mom headed north….after fighting traffic for 2 hours they arrived to find out the lab team was backed up by 45 minutes…I guess a lot of kids needed blood work today. Once labs are drawn there is then at least a 1 hour waiting period before results are back. They are watching Logan’s CD 34 counts. When they are in a perfect window is when they transplant. It is critical they get these stem cells at the right time, otherwise we can not proceed with the experimental MIBG radiation treatment. So roller coaster…..our stomachs go crazy up then down. Maybe we should just try putting our hands up in the air we are on a roller coaster….doesn’t that help with the stomach issues?
Also I will take this public forum to say how much I love my wife. Cancer is nasty…not only for our son but also for our family. We WILL get this through this together and come out stronger in the end. I LOVE YOU!