4 days since we posted, so you know we are doing o.k. The 24 hour IV was disconnected from Logan at 2:10 on Friday and he was extremely excited. It was a long week being connected 24 hours a day, driving to Seattle every day, waiting at Children’s for the pump alarm to go off to indicate the transfusion was completed….. just a long week for Logan to endure. But he did it and that can be checked off the list. Yeah Logan! No side effects at all. He played with Chloe every day with full energy. On Friday night after some time on the Wii, Logan and Chloe set up a garage sale in the living room until 10:30 p.m. He has really been enjoying himself and eating really well still.
Tomorrow, Logan and Dad head to Children’s to get an 8 a.m blood transfusion. This is to make sure his levels are where they should be for treatment on Monday. Then we start with a blood draw on Monday at 7:45 a.m, followed by a clinic visit ( they just check him over, breathing o.k?… check, feeling o.k?….. check, pain?….. check ) then we are off to be admitted on the cancer floor for at least 5 days. They are anticipating a later discharge ( Sat or Sun instead of Fri ) due to the IL-2 drug (24 hour infusion ) that was given to him. We will see the same pain, but this time partnered with more “flu like” symptoms, nausea, diarrhea… etc. Our highlights: being done with the 1st treatment and the 24 hour IV. Being able to share our time with the Towne Family, as they will be admitted at the same time.
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Thank you for keeping us up to date on what is going on. I hope and pray this week is “to be expected.”
Please kiss Ben and especially Carin for me!
Love to all your kids out there.