As you can see Logan is feeling better….the attached video is Logan boxing on the Wii at Nana & Papa’s…….he won!
Bowling Champion of Norwich, NY…..Logan James Lewis!
We made it to New York! What a travel day….Logan did awesome helping out with his little brothers first flight.
Logan is feeling a lot better. Still not much of an appetite but getting better. Today we stopped by uncle Joe’s work at Lowe’s and Logan was put to work (note the apron in the picture above). We then stopped by Papa & Nana’s work and Logan worked the forklift w/ Papa. He had a perma grin on the whole time.
Logan is doing better and better hour by hour. Yesterday he needed some fluids at Children’s because he was a little dehydrated. We have also been giving him Pedialyte through his NG tube as well. Last night he boxed against mom & dad on the WII and dominated us.
Tomorrow we all fly out to upstate New York to see Logan’s Nana & Papa as well as Uncle Joe & Aunt Amber as well as the cousins. Logan is so excited. He cannot wait to go fishing w/ Papa & Uncle Joe. We have all the traveling medical records if Logan were to need any medical attention there. We are so excited just to get away from appointments and just relax and be a family. We will be taking many pictures that we will be sure to share w/ his extended family….all of you. Thank You for your thoughts & prayers.
Well… we are not quite rested, but so relieved to be home and have Logan mentally recovered that is just doesn’t matter if we sleep or not. Logan is well, mentally he has fully recovered, physically he is improving. We battled stomach pain and diarrhea yesterday and last night. He spent most of the day on the couch and went to bed really early. Today… Logan got better every hour, near the end of the day Logan was playing baseball and running the bases. At 4:30 p.m he was done and asked to go inside, took a bath and was in bed asleep by 5:15 p.m. We are expecting Logan to even be better tomorrow.
Although Logan is recovered Jason and I are still very devastated to say the least. We have not been that scared since Logan was initially diagnosed with cancer. Logan was mentally gone for multiple days and Jason and I just fell apart. It was horrible. We are traveling to Children’s tomorrow to do labs and have a clinic appt. and then off to New York on Weds. Jason and I are going to take some time to decide whether we will continue the treatment or not.
During these times we have great support. As Jason and I both needed to be with Logan during this time we had great help with Peyton. We really appreciated being allowed to focus on Logan and know Peyton was in great hands. Thank you Aunt Traci, Uncle Pat, Aunt Kristi and Wendy Casello. You made a horrific week alittle easier. Thank you Townes….. we truly miss spending our days with you. Thank you to my parents… you have a wonderful gift of understanding me when I am hysterical…..
We will say we are happy, so happy that Logan is strong and he is recovering, happy that we are a family, happy that we can leave this behind and go on vacation.
We are home….Logan is better….we are tired. Thank you all for your thoughts & prayers during this being the hardest week in our lives.
I should be sleeping figuring I did not sleep last night…..but I find writing this blog a sense of relief. Thank you all that check it and leave comments. They help Kelly & I get through these tough minutes, hours, days. Logan is slowly getting better. He finally fell asleep and took about a 2 hour nap from 5pm to 7pm (he had been awake since 12:30am). He woke up and watched a movie and ate about 6 strawberries. We also called mom at home and he told mommy hello nice and clear which is great since he has not been speaking clearly. He also told me his foot hurt so he needed a drink of water….well that is all for now….I think.
Progress…..slow, but progress. Logan is coming around (of course way to slow for Kelly & I). As I type this he is watching cartoons. He still is reaching for things that are not there. He is communicating a little better. We went on a walk and enjoyed the sun & the 90 degree weather. Thank you all who have left comments as well of those who continue to pray for Logan’s quick recovery. Thank you to Uncle Pat, Aunt Traci, & Aunt Kristi for helping out w/ Peyton. Last night Peyton stayed at Pat & Traci’s and was an angel and slept through the night.
We are at an all time low…..Logan is still hallucinating and having trouble responding. Kelly and I both stayed last night and we did no sleep at all. Logan will just stare and make noises and reach for things that are not there. We want this so bad to be over….we hate this. We are awaiting the Neuroblastoma doctor to come down. Sorry we do not have good news…..
105 temp….incoherent. The doctors stopped Logan’s IL-2 medication this morning 24 hours early because of his condition. He got so bad that he could not open his eyes and/or communicate. He was also hallucinating and reaching for things that were not there. As parents we are scared, very scared. Since they stopped the medication this morning about 11am he has opened his eyes. He still is hallucinating. His temp has also gone down to about 103. They do still have him on a lot of morphine because he is still getting the antibody until about 6pm tonight. It’s hard to believe that just Sunday he was running around the yard out of control playing w/ Chloe. I did ask him to smile minutes ago…..he did. It was awesome. It has been a relief having the Townes room w/ us. Through our scariest times we know we have relief just a curtain pull away. They are an amazing family.