Good Sunday morning to all. Rough night last night. Logan’s tummy was pretty upset. We were up three different times throwing up. This morning he is feeling better but does not have an appetite. He is watching T.V. right now as well as playing his Nintendo DS. He just took his medicine for his next chemo. He has to take two little pills. The nurse was very impressed how he did. She said most kids his age they need to crush them up and put them w/ chocolate to hide them. Logan shot them right down w/ sprite.
We also did acquire a roommate last night at 11:30 pm. We were kept up until about 12:30am while they got situated. The little boy then woke up at 4am w/ stomach pain and was very unhappy about it. That in turn woke Logan up.
This mornings front page article in the Seattle Times is about an 11 y/o girl that has been battling Nueroblastoma for four years. Our nurse this morning has worked w/ her a lot and said she is an amazing little girl.
GREAT NEWS! Today we got the results back from the CAT scan and MIBG (bone scan). Logan’s tumor in his belly has shrunk over 1/2 the size and the cancer spots in the bones has decreased significantly. Every one’s thoughts and prayers are working. I also have to give credit to one amazing 5 year old. Logan has endured more trauma/pain than some do in a lifetime and he is amazing. Since Logan was born every night before I go to bed I go into his room and make sure he is tucked in and I whisper every night “goodnight best friend” I can tell you I am very lucky to have an amazing wife, a new amazing son, a wonderful son in Josh and the best older brother for Logan, and my best friend Logan. We are also very fortunate to have a great network of friends, family, and total strangers that keep us in their thoughts…..THANK YOU!
Logan will be admitted tomorrow morning (Saturday) at 8am to start 3rd round of chemo. Hopefully if all goes right we will be out Tuesday. The doctors are also trying to get us the CAT scan pictures electronically to put on the blog so everyone can see the tumor from when it was first discovered (big grey softball) to now…Kelly & I could not see it at all.
Yesterday he had the bone scan as well as bone marrow test. Dad went with him into the room where they put him to sleep. He was talking to the doctor asking about the medicine (it looked like milk). The doctor told him it was sleepy cow milk. Logan thought that was funny. They injected it into his Hickman line and within 10 seconds he yawned and was out cold. They kept him under for about three hours. Mom, Dad, Grandma, Grandpa David, & Peyton played cards in the cafeteria….boys vs. girls. It ended in a tie for those competitive ones out there. When Logan was done they brought him back to the room. He continued to sleep for about another 1/2 hour. The nurse then took the tubes etc. off and that started to wake him up. The first smile we got was when we put Peyton by him and Logan snuggled up to him and gave him a kiss. He continued to slowly wake up over the next hour. It was like he was drunk…he would try to talk to Kelly about wanting juice but we could not understand. The good thing is he did not get scared and was VERY brave. By the time we got home he was running around and he helped give Peyton a bath. Logan usually goes to bed about 8:30pm but due to the late nap he was in Mom & Dad’s bedroom waking us up at 10:30pm.
Today, hopefully we will get results of CAT scan & bone scan. Enjoy the picture. This was when Logan was just waking up.
Good Wednesday to all. Today Logan had his CAT scan at Children’s Hospital. We will hopefully find out results on Friday during our clinic with the doctors. He did excellent. The nurses are all so impressed how he listens and how still he lays. We had to wait in the waiting area for an hour for some medicine they gave him to go through his body so we played a video game. It was amazing how fast Logan picked it up. Two or three games in he was beating Kelly & I every time. After the CAT scan they injected Logan w/ some radioactive medicine for his MIBG test (bone scan) tomorrow. The down side is they recommended he not hold Peyton and try to stay about two feet from him. It has been so hard for Logan because he always wants to kiss and hug him. He is an amazing big brother. He even changed his first diaper yesterday with mom.
Sorry I missed a day. That’s a good thing…not much happening. Logan has has two great days at school. Today after school mom, Peyton, & Logan had to go up to Seattle Children’s Hospital for a heart test. Normal procedure & early signs are is everything looks fine. Tomorrow is a CAT scan on chest, pelvis, & abdomen. We will probably not see/hear results on that until Friday’s clinic w/ the doctors. Logan is also gaining weight which they love. Since the initial surgery to get biopsy of tumor he has gained 4 pounds. Thank you all for your continued thoughts and comments. Kelly, Logan, & I go back and read them and it really brings smiles to our family.
BBQ went great! As you can see from the picture at right the kids had a blast. Logan & Dad are very tired so we decided not to go to home opener of Seahawks today. Instead Logan’s big brother Josh and his step-dad are going to go. Logan said he wanted to stay home and play w/ his neighbor Chloe. Logan’s aunt Elaine (my dad’s sister) came up from Vancouver, WA to see the kids. It was great to see her. Everyone have a great and relaxing Sunday. Pictured from Left to Right: Alexa Caufield (friend), Andrew Lewis (cousin), Chloe Casello (friend), Logan Lewis, in back posing w/ thumbs-up Sydney Lewis (cousin).
Today is a good day. We are relaxing around the house. We are having a BBQ later this evening w/ friends and Family. Logan is so excited! We will try to get some pictures and post one on the blog tomorrow. Thank you to all for your continued support, love, & prayers.