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Author: Jason Lewis

Good Day…….

Good Day…….

Today was what we consider in this “cancer world” a good day.  Logan, Peyton, Mom, & Aunt Aimee headed north to get an MRI as well as get antibiotic.  They were home by 2.  On the way home Kelly stopped to rent a wheelchair and it works out great.  Logan has a lot of trouble getting around and the wheelchair helps out a lot.

All day Logan has been in great spirits.  He has been laughing, joking around…being a normal teenager.  The greatest part is no hospital until Monday!  Logan is soooo excited.

Lastly we/he has been receiving gifts/messages from friends, family, complete strangers….Kelly and I want to personally thank every person.  Of course we cannot.  Please know your gifts, prayers, thoughts are helping tremendously!  We celebrate every minute, hour, day and your support yes you….means the world.  Thank you!

#loganstrong

We get to go home!!!!

We get to go home!!!!

Logan had a lot of trouble sleeping last night as the brace they have him in is very annoying.  He only could lay on his back with very little movement and that really frustrated him.  Other than the lack of sleep no fevers and counts are on the rise.

So today we have an MIBG appointment at 1pm that will last 2+ hours and then we will head south to home.

I also had a chance to meet with the orthopedic doctor and surgery will take place in the very near future on his broken femur.  They are trying to schedule it but are backed up in the OR.

So here is the schedule as I know it but we have learned that this will change:

Today: MIBG the home!

Tomorrow: 2-3 hours in the car for a quick appointment to give antibiotic and do blood draw.

Friday-Sunday: Home with friends and family

Monday: Meeting with Dr. Park to discuss if experimental is working…if it is he will start another round of chemo that week.

Sometime in the near future: Surgery on his femur

I have to go as he is challenging me in a game of golf on the xbox;)

#loganstrong

Update on the amazing pain tolerance of Logan…..

Update on the amazing pain tolerance of Logan…..

So we found out why Logan is having so much trouble walking.  At some point he broke his femur!  We are thinking it was last week when he was leaving the hospital when his leg gave out on him.  This whole time I/we have been making him exercise in the pool and walk around the hospital.  He has been doing the best he can and all along his leg was broken.  He literally has super power strength/pain tolerance.

What’s next?  No surgery.  This afternoon they will be fitting him with a special hip brace.  Also no weight bearing activities.

So we will be here at least another night.  Tomorrow he has his MIBG at 1pm which will last 2+ hours then hopefully we can go home.  Fingers crossed.

I also want to correct my previous post.  The blood draws today were for the current experimental not for the Ben Towne one he will be doing later.  I do encourage everyone that does not know Ben’s story to still look into it.  His family is an inspiration.

#loganstrong

One day at a time……

One day at a time……

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Logan spiked another fever last night of 103.8 so he will be there through at least Wednesday.  His blood pressure also dropped again.  Currently as I type this though his fever is gone and BP is stabilized.  His leg is also once again giving him severe pain so much so that he needed morphine last night.

Today they are collecting blood throughout the day to send to the Ben Towne Research Center for next phase of experimental.  They are doing amazing things there. Follow above link to find out more.

Today Logan will also be getting an x-ray on his hip legs to see status of what possibly is causing pain.  We will also be getting bone marrow aspiration results back from yesterday.

I will be heading up after work to give Kelly a much needed break….hopefully I will be returning home on Wednesday with Logan.

Today I am angry….I hate all of this.

#loganstrong

Long day but good day….

Long day but good day….

Welcome to Logan’s new website….Thank you cousin Andrew for creating this.  We figured it’s easier to remember Loganstrong as a website.  You can still go to the old and as you probably have seen it redirects you to the new.

Logan had a good day but long day….

First both Mom and Logan slept great through the night…..especially mom who needed it;).

Logan was supposed to have a bone aspiration at 11 this morning.  With this procedure he actually gets “put under” so he could not eat in the morning.  This procedure is where they actually draw bone marrow from his pelvis on his back.  They actually stick big long needle into bone to get marrow…in two spots.  Logan as usual takes it all in stride.

So back to was supposed to have at 11am….before he was supposed to go down and get procedure he needed a dose of blood platelets.  Unfortunately the platelets arrived late so they moved the procedure back to 2pm….that did not happen either.  They fell behind in clinic and Logan/Mom finally went down about 3:30 to complete procedure.  Logan was not allowed to eat all day.

Once Logan was done and back in room he was starving.  He requested from a local bakery a BLT, Cinnamon Roll, and a Bagel.  Mom headed down to fulfill his order.

Soooo.  Long day but Logan is doing great.  His counts were at 180 this morning.  They were at 30 yesterday.  Kelly is being told they possible get to go home tomorrow night if above 200.  The doctors are anticipating them to be in the thousand range.

Logan continues to inspire many…..

#loganstrong