Great weekend! Logan and I had the privilege of attending the 3rd annual Run For Mile race. Great picture above of Jacoby & Logan! Both of them are an inspiration to so many.
This week Logan and Mom will be up at Seattle Children’s Hospital doing all the tests again to see where the cancer is. This is required before he does the MIBG experiment the first week of December. Logan continues to feel great!
#jocobyandloganstrong
Remember as a kid you can say FREEZE and everyone playing has to stop…well I want to FREEZE life. Logan is feeling great! He is a normal teenager texting/face-timing until we tell him time for bed. Peyton is loving his new haircut because he gets to grow it out on top…and Logan says it looks cool. Kelly and I get to spend some much needed time together and talk about things besides hospitals and cancer.
FREEZE! PLEASE…..
Logan is doing great. He had his first physical therapy appointment today to focus on regaining strength in his leg. He loved it! They therapist was also very impressed with his endurance. He goes back tomorrow for more therapy and is actually excited about it:).
#loganstrong
ter·mi·nal
/ˈtərmənl/
adjective
The last three days have been a roller coaster ride for our family. One minute Logan’s counts are wrong, the next everything looks great, then we get a call last night that they did not collect enough stem cells. So instead of day off, back to hospital at 8am (traffic up at 5am). We need to remind ourselves Logan is in experimental treatment and nothing is by the book anymore. This morning Logan and mom headed north….after fighting traffic for 2 hours they arrived to find out the lab team was backed up by 45 minutes…I guess a lot of kids needed blood work today. Once labs are drawn there is then at least a 1 hour waiting period before results are back. They are watching Logan’s CD 34 counts. When they are in a perfect window is when they transplant. It is critical they get these stem cells at the right time, otherwise we can not proceed with the experimental MIBG radiation treatment. So roller coaster…..our stomachs go crazy up then down. Maybe we should just try putting our hands up in the air we are on a roller coaster….doesn’t that help with the stomach issues?
Also I will take this public forum to say how much I love my wife. Cancer is nasty…not only for our son but also for our family. We WILL get this through this together and come out stronger in the end. I LOVE YOU!
#loganstrong
Sooooo what has been a long crazy day thinking that the last treatment of chemo did not work (a.k.a. bring his counts with in range to do stem cell harvest) we found out late it did. Unfortunately there was a miss communication in the lab and they sent the wrong results. We got the call we wanted to hear tonight (sort of). “The results we went over with you today were the wrong results… Logan is actually exactly where we need him. He needs to be at the hospital tomorrow at 9am to harvest his stem cells.” Great news! Mistakes happen right?
So tomorrow Logan & Mom head up early to harvest stem cells which will be used in the MIBG experiment he will go through after Thanksgiving.
Every second…every minute…..every hour….every day…..
#loganstrong
Logan’s ANC counts skyrocketed over the weekend to 5600! He is feeling amazing. It’s kind of surreal as everything went almost too well this last chemo treatment. We are awaiting for another blood measurable (not sure of technical name) to come up to harvest stem cells. Tomorrow morning he will head up early to get platelets as well as get another blood draw. Currently the plan is to possibly do the stem cell transplant on Wednesday. There is a possibility that Logan did not respond to the chemo and therefore would need a stronger dose and go through the procedure again…..we should find out more in the next couple of days.
He went with the crash test dummy costume to go with his crutches….his idea. The whole idea of the wig is because he did not want to be bald anymore;)
Once again our family is amazed at the outpouring of support. Thank you Fruitland Elementary Students, Staff, & PTA. They did a fundraiser that allowed kids to pay a $1 to wear a hat to school….they raised $1500!
We also want to thank Kalles Jr. High for their continued support of #loganstrong….amazing!
Thank you for your continued thoughts and prayers!
#loganstrong
Logan continues to look & feel great! This past week while receiving chemo he did not get sick at all and ate great (gained 3 pounds)! This week Logan’s counts will drop and we will once again need to isolate him to make sure no exposure to viruses. To help his counts rebound quicker and prepare him for stem cell harvest I am giving him shots daily at home. This morning when I gave him his shot I looked up at him as I jabbed him and he was smiling….amazing young man.
8 years ago when Logan was battling Neuroblastoma the first time a close friend of ours, Mario Casello, started a 3 on 3 basketball tournament to raise money/awareness. The first year it benefited our family. Every year since it has benefited another student in our community that is battling a life threatening issue/disease. Two years ago LoganFest 3 on 3 basketball/fun run benefited Jacoby Miles & family. Jacoby was paralyzed in a gymnastics training accident. I have had the privilege to get to know Jacoby and her family and am amazed and inspired by her/their strength and love. This year at the 3rd annual “Run for Miles 5k & Half Marathon” they will be returning the favor in support for Logan and his fight with relapse of Neuroblastoma. I plan on running/walking so come watch me suffer;) Register today at the link below!
Come alongside Logan Lewis in his fight against Neuroblastoma by participating in the #LoganStrong Raffle!
What: Great prizes such as signed Seahawk’s memorabilia, Seattle Sounder Tickets, North Face jacket, and many more!
When: 11/14/2015 Where: “Run for Miles 5K and Half Marathon” www.getwelljacoby.com Need not be present to win.
How Much: $5 per ticket Other giving: www.loganstrong.com/donate
Information: email Gretchen Miles at lots_of_miles@yahoo.com
Sponsored by: Reaching for Gold Booster Club
#loganstrong
Two days into getting chemo Logan is feeling really good. No nausea or weakness. I’m sure as the week goes on things will change but Logan amazes me everyday with his strength.
I have been reading more about the next stage of the experimental treatment. It is the MIBG therapy. Not sure if I have posted this link before but this explains what Logan & family will be going through just after Thanksgiving and Christmas.
Check out all the different jewelry supporting #loganstrong!
Logan & Mom did the 2 hour commute north this morning to start week of chemo to find out scheduling/communication was wrong. Instead of doing his chemo Monday-Friday it is Tuesday-Saturday then a trip up Sunday to get a shot. Frustrated…yep.
So unless something changes Logan will get the chemo drug Topotecan (same as he had in earlier experimental treatments) Tuesday-Saturday. His counts will then tank to zero and will be very weak. He is frustrated because he just started getting his hair back. This drug unfortunately will make what little hair he has grown back fall out.
This past weekend we had a very relaxing weekend at Lake Chelan.
#loganstrong
After fighting traffic for 3 hours Mom & Logan arrived at Children’s to get his T-Cells harvested today. As you can see from the above pictures he is doing great and continues to amaze us all with his strength. He is unable to move his arms so it is a day of TV watching. He was hungry for some popcorn so Kelly bought some and would lay it on his sweatshirt and he would extend tongue to eat them. He thought that was awesome:). They will harvest & freeze his cells to use at a later time. We are going to head to Chelan for a quick get a way this weekend then on Monday he does a week of chemo to get ready to harvest stem cells.
#loganstrong