#Loganstrong

Kelly & I are at a complete loss for words, THANK YOU!

Logan is having a great day….currently he is over at a friends house getting some good x-box time in.  His hip was feeling a little better this morning and he was able to lift his left leg slightly.  Last night he had a little fever of just under 100.  A little Advil and good nights rest cured that.

We are awaiting a call from Seattle Children’s Hospital on what’s next….initially when we met with his doctor last week she was going to call us give us our schedule once they had results back from the biopsy’s they performed.  Kelly & I are planners but as anticipated our schedules right now will be determined by the amazing doctors at Seattle Children’s and faith.

8 years ago today Logan was diagnosed with cancer at age 5…days later his little brother Peyton was born.  Ironically almost to the day Logan begins his fight again.  Having his baby brother around after surgeries or feeling sick was a blessing.  It always made Logan smile and feel better.  Now Peyton almost 8 years old is helping once again.  He has designated himself “crutch-man”.  Whenever Logan needs his crutches Peyton is there to retrieve them.

Brotherly love…..

Great day for Logan…. Nana and Papa are here from NY and he is getting spoiled with love.  His hip is giving him the most issues…very sore.  He did walk up the driveway and back with his crutches to exercise today.  Logan is amazing!

Inspiration…

Logan has inspired so many people.  His strength, his will, his fight, his love, his smile.  As I type this tears run down my cheek.  I am so proud of my son.  It is so hard to watch him suffer.

We have a huge obstacle in front of us but I am confident we can beat this.

The support our family has received has been overwhelming…in a great way.  Kelly and I want to reach out to everyone of you and say thank you….your kind words, prayers, pictures mean so much to our family.  Thank you.

Above is a great picture I took earlier this summer while on a camping trip with the boys.  Logan is an amazing big brother.  Peyton has been well distracted these past couple days playing with friends. About 2 hours ago I was working with Logan on getting up and walking.  Logan was really struggling with the pain.  I looked over at Peyton and he was staring just worried for his big brother.  Later Logan needed help getting up and Peyton ran over to help.  It was awesome.

One day at a time….

Logan is in a lot of pain but otherwise in great spirits.  We are trying to control pain as much as possible to make him comfortable.  The area that hurts the most is where they placed the port.  As you can see by the above picture they made small incision and placed under his skin about 1 inch below.  Once the skin scars/heals around it it should feel better.  The purpose of the port is when they do need to give him medicine, draw blood in the future they will access that vs. sticking him with needled all the time.

He was up a lot last night as he can only really sleep on his back.  He has the 2 incisions on his hip bones where they did bone biopsy’s as well as incision in his left hip where they actually went in and took some bone out to send to labs for testing.  I went and kissed his forehead before I left for work this morning and kneed him in this area…he let me know about it:(.He is an amazing young man and a hero to many!

We are home!  What a long day.  Logan as expected did awesome and still has his arm;)!  This weekend will be spent just laying around and watching a lot of movies.  His Papa & Nana are coming from upstate NY on Saturday.  Logan is very excited to see them.

We learned today that we do have somewhat direction of what we will be doing next.  Kelly is going to take leave from her job.  Unfortunately I  have been at mine less than 12 months so I do not qualify for certain leave benefits.  However my co-workers/boss/friends have been amazing supporting us.

Thank you!

Jason, Kelly, Logan, & Peyton

Logan is in surgery as I type this.  He is doing amazing!  The kid is so strong.  He has been joking around this morning.  He was a little nervous when I said goodbye to him as he walked in the the OR room but laughed when I yelled “hope they don’t cut off your arm!”

We met with Dr. Julie Park this morning.  She is his Neuroblastoma doctor who has overseen his treatment from day 1.  We discussed different treatment options with her.  Logan was in the room and was included in all conversation.  We really liked how much she involved him in the decision making.

So what’s next….it sounds like he will start some sort of chemo treatment the week of August 3rd…It will be an early 15 year anniversary celebration of our August 5th wedding anniversary;).  The early goal of all treatment is to knockdown/slowdown the progression of his cancer.  Once he responds to this then phase 2 is to rid him of cancer.

We are are being asked a lot where is his cancer.  It is basically all over….it’s not something they can surgically remove.  The surgery today is to get a piece of his femur bone to send to a lab to see what chemo he needs.  They will also be doing a bone marrow biopsy on both hips and placing a port in his chest.  The purpose of the port is so when he gets medicine at a later date they do not need to constantly stick him with needles.  They just access the port.

Thank you all for your continued thoughts and prayers….the power of our friends & family has really helped us.  One day at a time!

Jason & Kelly

Late last night we got the news we did not want to hear.  Logan has relapsed.  This morning we are heading up to Seattle Children’s hospital to meet with his doctor to discuss options.

We are heartbroken.

Above is a picture of the Logan’s left hip area that is of concern.  You can see the inflammation and difference between the bone in the right hip.

Kelly & Logan ventured north to Seattle about 11:30 am and did not get home until 6 pm.  They only had 2 appointments.  First appointment was at 2 pm and was a quick injection of some nuclear substance into Logan.  Yes it is literally a radioactive substance called a tracer and when they do the MIBG tomorrow it will light any Nueroblastoma cancer like a Christmas tree.  The nurse unfortunately was having trouble starting the IV and blood was going everywhere.  Logan was not to happy about that. The next appointment was supposed to be at 3:40 pm but doctor was finishing casting another child so did not get to them until about 4:30 pm.  

We found a little more about Thursday’s surgery.  It actually will be an out patient surgery which we were VERY glad to hear.  The doctor described the area around his left hip and femur as not a mass but more of liquid in the bones.  So what she will be doing is drilling a hole into his bone to drain liquid as well as test marrow.  He will be on crutches for 2 weeks because bone will be weak and a fall could break it.  Logan is actually excited to be on crutches….thinks it’s cool.

So tomorrow Logan, little brother Peyton, and I go up for a 2:30 pm MIBG scan hopefully that will show NO Nueroblastoma.

(picture above is them staying busy between appointments)

Thank you all for your continued thoughts and prayers.