#Loganstrong

It’s been an up and down week for Logan.  He finished up treatment Friday night but based on how he felt last time it was planned he stay a couple extra days for hydration.  So that brings us to today.  He is hydrated for the most part.  He just received platelets, as they were low as well.  But now his team is having trouble controlling his pain.  Logan is never one to complain of pain.  They do a pain scale with him 0 being no pain 10 being awful.  He almost always is a 0.  I think the highest I have ever heard him go was a 5 (and that was with a broken femur).  Today is is at an 8.  It is not consistent as it comes and goes.  They doctors are hesitant to send him home until the pain is controlled.

Is is getting his appetite back.  Logan is not one for the hospital food so he always sends his mom out to get what he is craving.  Today he decided to give the hospital food another try and he ordered nachos.   Who knew he would get one huge cheese chip;).

Thoughts and prayers the pain will go away to Logan & mom can come home….

#loganstrong

Logan was admitted this morning for round 2 of his antibody treatment.  Before they proceed with his chemo he is receiving platelets and blood as both of these were very low.  During the Q&A with the doctor Logan was asked if he had any pain.  He does not.  If he had any pain they would not have proceeded.

Logan had a great weekend.  His strength/energy is very close to normal.  He continues to eat great as well.

We are hoping this treatment is a little easier on his body than the last.  The team of doctors have altered the chemo dose as well as the pain medication.  They will also be administering the antibody over a 10 hour period vs the 20 hour period like last time.  He will more than likely get another fever.  If his blood pressure drops to low they will stop the procedure.

He continues to inspire me everyday with his positive attitude and strength.  I am the luckiest dad in the world to call him my son.

#loganstrong

One of the doctors on Logan’s team finally called up about 9:30 last night.  They think it would be best to hold off on another antibody treatment for another week.  Weight gain and strength is the goal.

Hopefully with this extra week we can escape somewhere as a family….

#loganstrong

Unfortunately we are not sure if Logan will be admitted on Monday.  Logan and Kelly spent most the day at the hospital but some miscommunication has left us not knowing what’s next.  We are awaiting a call from his team.  He did receive platelets today.  He is close to needing blood and his ANC is pretty low so they/we will keep a close eye on that.

Yes, you can read into this post…we are a bit frustrated with the communication.  We know that Logan is not the only patient…but he is our TOP priority.  When there is a lack of communication we get extremely frustrated.  So right now plan is to admit Monday, but we are not sure.  Logan of course is cool with whatever.  He would actually prefer to wait another week to gain back strength.

We know that he is under some of the best care in the world….We as any parent want ALL of their attention.

I will update everyone when I find out more.  In the meantime Logan is enjoying Xbox time:).

#loganstrong

Everyday is a little better than the one before.  Although still pretty weak Logan is now back to playing Xbox and spending a little time with friends.  He is also eating great which we all love!

On Friday Logan & Mom went to Seattle for a blood draw and to continue to discuss next steps with Logan’s team of doctors and nurses.  Logan’s blood results maintained and he did not need any transfusions.

So the plan is for him to do the antibody treatment again next week.  The team will alter his medications and the duration he receives the antibody.  The goal is no hallucinations and quicker recovery time.  They will be administering the antibody over a 10 hour span vs. the 20 hour span last time.  They are going to try a different pain medication than morphine.

Unfortunately the chemo Logan received this last time is causing him to lose his hair.  This, as you can imagine, is very upsetting for a 14 year old teenager.  He asked for his head to be shaved….I think he still is handsome as ever!

#loganstrong

Logan continues to feel pretty weak and tired.  He met with his doctor today at Seattle Children’s Hospital and recapped last week while he was admitted.  His main doctor, Dr. Julie Park, was out on vacation while he was in patient.

She is very concerned with how he responded to the antibody treatment and the side effects he has experienced.  Mainly the hallucinations and the recovery time to gain his strength back.

Over the next couple weeks (before next scheduled admittance) we will continue to partner with Dr. Park and her team how we should proceed.  She is concerned his body possibly cannot handle more treatment.

One day at a time…..

#loganstrong

Sorry I did not update yesterday.  Logan and I got back home last night.  He received lots of fluids and platelets.  Both made him feel a little better.  The platelets made the rashes/spots on his body go almost completely away.  He is still pretty weak but hour by hour getting stronger.  We even managed some Xbox time last night.  Today the plan is more rest.  Tomorrow he has a check-up with Dr. Park to discuss last weeks treatment as well as moving forward.

Thank you ALL for the thoughts and prayer….

#loganstrong

Logan woke up this morning still very weak and still a rash all over his body.  He was able to eat some scrambled eggs but remains very tired.  Kelly called his team of doctors and they wanted to see him ASAP.  I left work and we rushed him up.  Nurses took blood and rushed results (has them back in 7 minutes).  As they expected he is very dehydrated so he will be getting fluids.  His platelets have also dropped VERY low.  That is the reason for the rash.  The rash is actually a bunch of tiny little bruises.  In fact the nurse took his blood pressure here this morning and instantly he had the rash on his arm.  Hopefully we will leave here today with Logan feeling A LOT better….fingers crossed.

#loganstrong

Logan & Kelly are home….finally!  It was a rough last couple of days….very rough.  Logan continues to have a temperature of around 103 and a rash all over his body.  This is common for the antibody treatment but scary for all involved.  He has also been hallucinating and waking up from dreams terrified.  Last night in particular he thought he threw his little brother Peyton off a building and he could not stop crying.  He was so hysterical it made him sick.  Kelly has not slept in 2 days so being home is also good for her.  If his temperature does not go back down by tomorrow night he has to go back to the hospital.

Thank you all for thoughts and prayers….

#loganstrong

Logan (and his mom) continue to amaze with their strength.  The antibodies, chemo, and drugs have definitely taken there toll.  Logan is sleeping about 18 hours a day.  His average body temperature has been between 103 and 104 degrees.  This is common with this treatment.  He also is having some low blood pressure readings which cause the nurses/doctors to pay him more visits and wake him up.  He takes it all in stride and continues to smile.  The above picture is him outside watching the Blue Angels practice.  The nurses were amazed he had the strength to get out of bed.

The plan right now is for Logan & Mom to come home Saturday.  Peyton and I cannot wait:).

Please hug your kids tonight….#loganstrong