#Loganstrong

Logan is doing great!  This Thursday thru Monday, for the first time since this Summer, will not need to take ANY medications during the day!  His appetite is back and he feels awesome.  He will not need to take any medications until his Birthday next Tuesday the 19th!

Next week will be the re-staging week.  He will do all of his scans to see if the week spent in the lead room worked.  If it did work he will do another week in the lead room.  If it did not work then he will start the T-cell immunotherapy.

#loganstrong

Happy New Year!

Logan is on a small two week break from the hospital…sort of.  He does have to go up next Monday for a quick check-up.  What will he do with his time?  A lot of Xbox, Family, & Friends.  He feels great so hopefully a lot of activity as well.  He will also be turning 14 on January 19th!  Mom and Logan are currently working on party plans:).

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This is Logan writing today’s blog.  I have been going up to Seattle every Monday for a checkup. for Christmas i got a new charging case, gift cards, and some money that has already been spent on a new TV for my room. Over the holidays i have been spending time with family and i’m writing today’s blog in pack wood celebrating the new years. Nothing much has been happening with the hospital stuff, since the last blog i have gotten a bag of platelets and 2 bags of red blood cells. My new years wish is for there to be a cure for neuroblastoma. That is my blog for today and i will be writing more blogs in the future.  🙂

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Logan’s ANC counts are above 1k and going up!  This means a somewhat return to normalcy for him/us.  He can be out in public places without the risk of getting exposed to viruses.  This means he can celebrate his mom’s 40th birthday tomorrow in public;)!!!!

So it looks like we will have a break until about the 3rd week in January (still weekly check-in visits).  They will then re-stage Logan and see if the radiation/chemo treatment he just finished worked.  If the treatment showed signs of eliminating his cancer then he will do it again.  If there are signs it did not work they immediately cancel that experiment and move onto another one (T-cell immunotherapy).

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Today Logan is spending the day getting back stem cells they took (harvested) from him weeks ago.  The doctors collected about 8 million stem cells and froze them in four separate bags.  Today he is getting one of those bags transfused back into him.  It is an all day process as they will hydrate him as well as give him nausea medicine.  After receiving the stem cells he will then need to be monitored for 5 hours afterward.  So VERY long day for him.  Some of the side affects that the nurses will be watching for are low blood pressure, hives, fever, and nausea.

It is anticipated that Logan’s white blood cell counts will also drop this week.  This means that no public places and if he spikes a fever he is automatically admitted to hospital.

Logan had a nice weekend…after he was at safe levels of radiation he spent the weekend with one of his best friends…Logan.  Yes no typo they are both named Logan James.

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Logan and Mom are heading home from their morning appointment today at Seattle Children’s hospital.  Reports are good.  Logan’s counts remain good and radiation has pretty much left his body.  This means he is free be in public.  He is however still taking the oral chemo and will continue to do so through this Saturday.  This chemo has been making him feel nauseated lately.  He has lost his appetite which in turn lost weight.  The weight he worked so hard to gain is gone…he was down 5 pounds at weigh in this morning.  The doctor was not worried about it but Logan is…..he does not want to have to put back in his feeding tube.  So hopefully appetite will slowly come back…..

They are expecting his counts to drop early next week from the chemo so more than likely he will be in isolation next week.

Thank you all for your continued thoughts and prayers….

#loganstrong

Logan’s radiation registered at a 7.1 this morning.  He needs to be at a 7.0 to come home.  The radiation nurse told Kelly a couple of tricks to help lower the .1.  One of which was to change his linens and clothes.  Kelly did that and he is now at a 7.0 and heading home at noon!!!!!

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They just took Logan’s radiation level and he is now at 11.5 which is down from the 19 he was at yesterday.  They are anticipating him possibly leaving tomorrow.  Once he is below 7 he can be discharged.  Yesterday afternoon he experienced a little nausea.  After a good dose of Benadryl and a nap he felt better.  Today he has been feeling good…..had a bloody nose just recently due to how dry the room is.  He still has his great sense of humor through all this.  He informed Mom’s friend Mandy that he was going to turn his room into a man cave and block the camera so they could not see in:).

Can’t wait for Logan and Kelly to be home….

#loganstrong

Logan is doing awesome!

He received his radiation Tuesday afternoon successfully.  Two hours after giving him his dose of radiation they test his levels.  He registered “HOT” which is full of radiation.  His levels were 90.  They then test his levels every 24 hours and when he is below a 7 he can be discharged.  Yesterday he registered at a 39 and today a 19.  So currently a Saturday discharge is looking great!  His attitude has been amazing.  He has not experienced any nausea and he is sleeping well through the night.  For those that usually text/Facetime with him the hospital did not set this feature up correctly on his iPad.   So he is not ignoring you;)

The above picture is the TV in Kelly’s room.  It is on 24/7 looking over Logan’s left shoulder.  As you can see the entire room is lined with plastic.  All games/iPad that are in room are quarantined for approximately 6 months after treatment until they are radiation free.

Continued thoughts and prayers…they are working!

#loganstrong

Peyton getting in his last hug for the next couple weeks:).

Change of plans…Logan and Mom will be admitted today at 1pm.  The plan is still to start the radiation therapy tomorrow at about 2pm.  The 24+ hours is for both of them (as well as Aunt Traci and friend Mandy) to go through training and get accustomed to the room/set-up.

Here is a link to the medical explanation of the treatment Logan will be getting:  Clinical Trial

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