#Loganstrong

Logan is having a rather great week despite the circumstances.  Mom and Logan have been going up daily for chemo about 11am and are usually done about 2:30pm.  The nice part with that schedule is it gives Logan time to sleep in and play some video games in the morning.

This round vs. the last hes been much better controlling his sickness.  Dr. Kelly (a.k.a. mom) has found out the perfect mix of medicines to stay ahead his sickness.  She also went through some training and is giving him hydration fluids at home while he sleeps.

We thought he has been eating great but apparently the nutrition team at Children’s disagrees….So today while up getting treatment they will be placing a NG tube.  This will go from a small backpack w/ formula (food) through a tube into his nose and straight into stomach.  When I asked Logan about having the tube he shrugged and said “whatever”.  He continues to amaze us with his strength.

#loganstrong

Today Logan, Mom, & Aunt Traci met with Dr. Julie Park to go over progress on the experimental treatment Logan is doing.  Traci sent me a recap of the meeting…..

“Just finished meeting with Dr. Park.  Current plan is 2 more rounds of the same chemo.  With no scans until after 2nd round.  No surgery on leg for now.  Bone is too weak and it would delay chemo.  So they will meet with a physical therapist to learn how to move around better.  Still losing weight but going to meet with nutritionist again.  Going to start hydration through port at home to help too.  All in all positive appointment.  Bone marrow is less and no new spots on MIBG.  She said you can’t really tell on MIBG if there is improvement or not because it does not measure size just if Neuroblastoma is still there.  So no new spots which means chemo is stopping for now……”

Thoughts and prayers are working…..

#loganstrong

Logan had a great 3 days off of no hospital.  Tomorrow he goes back up to start round 2 of experimental chemo.   Round 2 is just like round 1…mom and Logan will go up daily through Saturday to get the chemo.  Good news is that they are continuing the experimental because early results show the growth of the cancer has slowed.  That is what the doctors were hoping is to “knock down” the cancer.

He still is pretty much immobile with the broken femur.  We hope to find out more information on the plan on when/if they will do surgery.  He is getting real good in his wheelchair….so is little brother Peyton who loves to cruise around in it as well;)

#loganstrong

Today was what we consider in this “cancer world” a good day.  Logan, Peyton, Mom, & Aunt Aimee headed north to get an MRI as well as get antibiotic.  They were home by 2.  On the way home Kelly stopped to rent a wheelchair and it works out great.  Logan has a lot of trouble getting around and the wheelchair helps out a lot.

All day Logan has been in great spirits.  He has been laughing, joking around…being a normal teenager.  The greatest part is no hospital until Monday!  Logan is soooo excited.

Lastly we/he has been receiving gifts/messages from friends, family, complete strangers….Kelly and I want to personally thank every person.  Of course we cannot.  Please know your gifts, prayers, thoughts are helping tremendously!  We celebrate every minute, hour, day and your support yes you….means the world.  Thank you!

#loganstrong

Logan had a lot of trouble sleeping last night as the brace they have him in is very annoying.  He only could lay on his back with very little movement and that really frustrated him.  Other than the lack of sleep no fevers and counts are on the rise.

So today we have an MIBG appointment at 1pm that will last 2+ hours and then we will head south to home.

I also had a chance to meet with the orthopedic doctor and surgery will take place in the very near future on his broken femur.  They are trying to schedule it but are backed up in the OR.

So here is the schedule as I know it but we have learned that this will change:

Today: MIBG the home!

Tomorrow: 2-3 hours in the car for a quick appointment to give antibiotic and do blood draw.

Friday-Sunday: Home with friends and family

Monday: Meeting with Dr. Park to discuss if experimental is working…if it is he will start another round of chemo that week.

Sometime in the near future: Surgery on his femur

I have to go as he is challenging me in a game of golf on the xbox;)

#loganstrong

So we found out why Logan is having so much trouble walking.  At some point he broke his femur!  We are thinking it was last week when he was leaving the hospital when his leg gave out on him.  This whole time I/we have been making him exercise in the pool and walk around the hospital.  He has been doing the best he can and all along his leg was broken.  He literally has super power strength/pain tolerance.

What’s next?  No surgery.  This afternoon they will be fitting him with a special hip brace.  Also no weight bearing activities.

So we will be here at least another night.  Tomorrow he has his MIBG at 1pm which will last 2+ hours then hopefully we can go home.  Fingers crossed.

I also want to correct my previous post.  The blood draws today were for the current experimental not for the Ben Towne one he will be doing later.  I do encourage everyone that does not know Ben’s story to still look into it.  His family is an inspiration.

#loganstrong

Welcome to Logan’s new website….Thank you cousin Andrew for creating this.  We figured it’s easier to remember Loganstrong as a website.  You can still go to the old and as you probably have seen it redirects you to the new.

Logan had a good day but long day….

First both Mom and Logan slept great through the night…..especially mom who needed it;).

Logan was supposed to have a bone aspiration at 11 this morning.  With this procedure he actually gets “put under” so he could not eat in the morning.  This procedure is where they actually draw bone marrow from his pelvis on his back.  They actually stick big long needle into bone to get marrow…in two spots.  Logan as usual takes it all in stride.

So back to was supposed to have at 11am….before he was supposed to go down and get procedure he needed a dose of blood platelets.  Unfortunately the platelets arrived late so they moved the procedure back to 2pm….that did not happen either.  They fell behind in clinic and Logan/Mom finally went down about 3:30 to complete procedure.  Logan was not allowed to eat all day.

Once Logan was done and back in room he was starving.  He requested from a local bakery a BLT, Cinnamon Roll, and a Bagel.  Mom headed down to fulfill his order.

Soooo.  Long day but Logan is doing great.  His counts were at 180 this morning.  They were at 30 yesterday.  Kelly is being told they possible get to go home tomorrow night if above 200.  The doctors are anticipating them to be in the thousand range.

Logan continues to inspire many…..

#loganstrong

We are now up on floor 7 in oncology. These rooms are amazing. Years ago when we stayed in the old rooms you would more than likely share with 2+ other patients/families. In the new tower we get our own room complete with a 42″ TV for Logan and a 30″ TV for parent. If it weren’t for the IV poll you would confuse it for a room at the Hilton;). The best part of being back on oncology floor is seeing some of our favorite nurses. As I always said 6+ years ago they are like family.

Logan is feeling much better. He went through the entire night with no fever spikes and BP stayed consistent. He/we are anxious to go home but I don’t see that happening until at least tomorrow. I am going to shower him in a bit then we will go on a walk to get some exercise and fresh air.

A HUGE THANK YOU goes to Jeff, Emma, & Polly Bennett and many of their friends and family who held a fundraising car wash yesterday in front of their house for Logan. They raised nearly $2300.00!!! Words cannot describe how thankful we are for the support.

#loganstrong