#Loganstrong

Sickness….

The chemo is definitely taking it’s toll on Logan.  He is very weak and sick.  We are trying to stay ahead of the nausea with the medications but they are in pill form and it’s makes him sick to take them.

So far he has not had a fever.  If one creeps up over 101 degrees we need to take him to Children’s ER.  Food is another issue.  Obviously not feeling well he has also lost his appetite.  Kelly met with a nutritionist and they said if he loses more weight they will look at placing the NG tube through his nose and into his stomach.  The tube would go to a backpack with a liquid formula.

Today, Logan’s Papa & Nana head back to New York.  It has been a blessing having them here.  Coming home to great meals (weight gain;)), beds made, laundry done, porch stained……  Thank you Larry & Bonnie for coming out.  It meant the world to us.  When Logan feels better we will plan a trip out there…hopefully to see Griffey get inducted into the baseball HOF!

Thank you everyone for your continued thoughts and prayers.

Happy Friday Everyone….

Logan, Mom, & Nana are already on their way home from Seattle.  Logan needed a quick x-ray to check the air around the lungs and no news is good news.

Logan is doing fairly well.  The doctors said he would/should be on crutches for 2 weeks.  Of course we are just over 1 week out and he refuses to use them….amazingly tough!

His lower back is really hurting him   Not sure if it because of the way he is walking (limping) or if the cancer is causing this.

Monday Logan starts his experimental chemo treatment.  Mom & Logan will be going to Seattle Children’s Hospital almost daily for 9 weeks for about 7 hours a day.  He will be getting a chemo that requires they flush his kidneys 2 hours before & 2 hours after.  He will be getting the chemo 2 hours in between.  He will be losing his hair again in approximately week 2…Logan’s response to this is hopefully when my hair grows back I won’t have this callac.

Thank you everyone for your continued thoughts and prayers.

Update…..

So the issue with the air around the lungs is possibly caused by the port they placed last Thursday in surgery.  They are hoping his body takes care of it…..so surgery avoided for now….  He is getting a baseline x-ray now and then will go back Friday for another one to see if the air is gone.

Video above was taken last night.  A co-worker and great friend of the family, Jeff , brought over his car because Logan loves sports cars.  Watch at very end of video the amazing smile….and yes that is his little brother in the passenger seat.

Nothing is going as planned…..

Kelly, Logan’s Papa, & Logan headed up to Seattle Children’s at 5:30 this morning for CT scan and meeting.  We thought it would be an easy/quick day up there but that is never the case.  Person that called to set-up meetings never told us he was not supposed to eat/drink so they delayed CT until 10.  They met with Dr. Julie Park and went over experimental treatment schedule.  Going to be spending a lot of time up there.  Basically starting this Monday 9 weeks of outpatient chemo treatment everyday for approximately 5 hours in clinic per day.  They expect Logan to lose his hair again week number 2.

CT took place at 10 and they are concerned about air around Logan’s lungs.  Kelly is awaiting more information from doctors but he may need to go into surgery today or tomorrow to relieve this and find out what is causing it.  Insert bad word here.

Logan is currently in getting an EKG as I type this (electrocardiogram to test heart).

I will update everyone once we find out more….

Taylor Swift….

Thank you Comcast and VP Matt Fassnacht for getting us four tickets to Taylor Swift concert August 8th in Seattle.  They also come with backstage passes to meet Taylor!!!

This will be a great distraction for for the family….

Order of most excitement:

1. Kelly (screamed when I told her)

2. Peyton (knows almost every song)

3. Logan (very excited but is a teenage boy so will not admit it)

4. Me (stuck in the 80’s)