Weak and tired…..

Weak and tired…..

Logan had his check-up with his doctor yesterday.  He has not been feeling very well.  Fevers, very tired, and no appetite.  The nurse did a nasal swab and it tested positive for two different viruses.  He has a cold/chest virus as well as a flu strain.  Unfortunately both viruses just need to “run their course” and are not treatable with antibiotics.  The positive is he is at the tail end if the sickness. His leg is going better.  Still sore…

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PAIN……..

PAIN……..

Unfortunately Logan is starting to experience more and more pain in his left hip/leg.  So much so that he is now requesting pain medication.  As many of you know the strength of this teen….he must be hurting.  He can no longer put full weight on his leg and is relying on crutches to get around. We will meet with his team tomorrow to see about what can be done.  We are assuming they will have an x-ray of the site…

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Some normalcy…….

Some normalcy…….

Logan has been feeling great.  Some occasional pain in his hip and rib area comes and goes but that does not stop him one bit.  He has been going to school everyday, hanging with friends….basically going non-stop. This weekend he is going to the mountains for youth group camp for the weekend.  We are then taking a small family getaway to Suncadia.  After that Mom and the boys are going to head back east to upstate NY for a week…

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One day at a time…….

One day at a time…….

We met with Logan’s team this morning via conference call.  Currently we are all in agreement for Logan to continue being a teenager and enjoying the daily activities that accompany that i.e. girls, friends, girlfriends, Xbox, being physically connected to your phone, ignoring your parents, sleeping a lot, staying up as late as you can etc. The team/family will evaluate things daily, weekly and decide next steps based on what is presented to us via new trials and/or Logan’s condition….

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Decisions no parents should have to make…..

Decisions no parents should have to make…..

We have met with Logan’s team and at this point don’t know what to do. Options are to have Logan do the antibody treatment again with 1/2 the chemo but this treatment possibly could do more harm than good.  Doing this again would also DQ him from other trials if available.  There is also a small chance this may stabilize the cancer.  He would start this on Monday. Do nothing right now and hope another trial opens up that Logan…

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Another week of scans and anxiety…..

Another week of scans and anxiety…..

This Wednesday/Thursday we are up at Children’s again getting scans and a bone marrow aspiration to see if we continue in the current study he is in.  If you were to conduct a visual scan of Logan you would never guess anything is wrong.  He feels and looks great!  He actually for the first time in 6+ months went out in public yesterday not wearing a hat!  His hair has grown back and he looks amazing. Holidays were/are continue to…

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Logan qualified for trial…..

Logan qualified for trial…..

Good news…Logan qualified for trial explained in last blog post.  We start Wednesday.  We had a pretty anxious weekend…….as of last Friday his team of doctors were unsure because his thyroid was showing ranges that could disqualify Logan from trial leaving us with limited/no options moving forward. We did not see our teenage boy most the weekend as he stayed the weekend at a friends staying up all night playing video games.  Some normalcy! #loganstrong

What’s next…..

What’s next…..

Thank you everyone for the thoughts and prayers.  Obviously it has been a tough last 19+ hours.  Our family is doing fine and are looking this in just another speed bump in Logan’s recovery. More importantly Logan continues to amaze with his positive attitude.  This morning he was commenting on how many of his friends on Instagram were wishing him well and re-posting #loganstrong.  He does not talk about it much but really appreciates the support.  I warned him he…

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