Not the news we wanted to hear…..

The cancer is growing again in Logan’s body.  If you recall at one point during treatment he was down to a spot that held a rating of a 1 on a scale of 1-30.  Last July 2015, he was a 29/30.  He is now a 15/30.

What does this mean?

Since his platelets are not above the required 50K to enter other trials, our only option is a treatment called Chimeric 14.18 Antibody.  He actually did it initially when diagnosed when he was 6.  Doctors have modified it briefly, but it is pretty much the same treatment.  He will be admitted Monday for 6 days.  Then he will take a 2 week break.  He will do the same treatment and take another 2 week break.  We will then re-scan and see if this is working.  If he does respond this treatment can last up to a year.  This treatment can be very painful as it can effect the nervous system.  They will be giving Logan Morphine along with the treatment.

Logan continues to amaze us with his positive attitude.  When asked by the doctor what he wanted to do…without hesitation he said whatever is next.

Right now we struggle with….everything.  Summer, School, Work, Life.  It Sucks.

#loganstrong

Back to the hospital……

BeerShooting

Lake Chelan with friends and family was amazing!  He joked around holding my beer above;).  He also learned to shoot a 9mm and did awesome!

Logan had a blast and went non-stop from the time he woke up until bed time.  You would never guess that cancer is present inside his body.  Last night I laid in bed and wondered why can’t we just control it and continue to live a somewhat normal life like we are?  I just don’t understand the beast called cancer.

Today & tomorrow Logan & mom make the hour plus trip north to Seattle Children’s Hospital and Logan completes all of his testing to see where we are at with platelet counts as well as where the Neuroblastoma currently is.  Where we go from here…..who knows.

Many feelings….frustrated, inspired, mad, confused, exhausted.

#loganstrong

Platelets going the wrong way?!?

FullSizeRender (002) FullSizeRender (003) FullSizeRender (004)

Logan had some blood work this morning and unfortunately his platelets went down 6000.  Logan continues to feel great though.  So after conversation between Dr. Park and Logan she wants him to enjoy his summer and they will reevaluate probably late July if he continues to feel good.  She is hoping to get him stronger before they move onto another experiment.  We have a family/friends trip planned to Lake Chelan July 16th-23rd.  The plan is to have scans done upon our return to see if cancer has remained the same.  So we will continue to try and live life as close to normal as possible, not knowing what tomorrow, next week, next year has in store.  One day at a time…….

Above pictures are from a brief family getaway to Seattle this past weekend.

#loganstrong

It’s been awhile……

It’s been awhile since my last post.  Logan is doing/feeling great!  He will be finishing up 8th grade this Thursday.

Last week Logan had blood work done to check his platelets.  They are recovering….slowly.  He needs to be at certain levels to go onto the next experimental treatment.  He is not there yet.  In partnership with his doctor we will wait another two weeks then reevaluate platelets/strength at that time.  The reason for the slow recovery is the two times in the radiation room REALLY wiped out his body.  His doctor currently is in Australia at a conference with the best Neuroblastoma doctors in the world.  They are all sharing their trials/results.  Hopefully she returns with some great news of other options we can pursue.

So currently he/we will start our summer vacation not knowing what’s next.  Unfortunately this means very little or no planning for vacations/getaways.

#loganstrong

Great Weekend Escape……

DCIM100MEDIADJI_0030.JPGDCIM100MEDIADJI_0065.JPG

DCIM100MEDIADJI_0078.JPGDCIM100MEDIADJI_0079.JPG

DCIM100MEDIADJI_0046.JPG

We had an amazing weekend escape to Seabrook, WA.  We cannot thank the Kern’s family enough for allowing us the use of their house.  It was beautiful!  Fun was had by all as Kelly’s parents joined us from upstate NY.  Some of the many things we did…..card games, bocce ball contests, magic shows, Xbox, arcade games, huge seafood bake, smores, zip lining, lots of beach time and walks.  It was awesome!

Both the boys have another day off from school today and will be heading to the movies with Papa, Nana & Mom.  Logan will now finish out the rest of his 8th grade school year with minimum hospital disruptions.  The plan is to let his body recover from all of the back to back treatments.  If/when his platelets recover to a normal range we will look at some more experimental options.  Logan has been and will continue to be involved in all decision making.  He continues to amaze!

Thank you all for the continue thoughts & prayers!

#loganstrong

Cancer still present…..

Unfortunately there is still signs of Neuroblastoma on Logan’s hip.  Of course we were hoping/praying for remission.  That will come in time.  Right now we are discussing next steps with Dr. Park.  As expected Logan continues to amaze with his maturity in discussion in next steps.  Glass 1/2 full…..there are other option/trials.  Before we go forward on anything they want Logan’s body to recover a little longer as his platelets remain low as his body is still recovering from the immunotherapy.

#loganstrong

The long wait…..

Logan will be finishing up his testing at about 1pm PST today.  We are scheduled to get his results around 3pm PST.  I hope to update his blog soon there after……This will be a VERY long day.

THANK YOU ALL SO MUCH FOR THE CONTINUED THOUGHTS AND PRAYERS!

#LOGANSTRONG

The week before the week…..

Next Monday thru Wednesday Logan will be completing all of his scans yet again to see if the experimental immunotherapy got rid of the remaining cancer.  There will be a meeting at 3 pm on Wednesday to discuss results and next steps.

If no cancer….we celebrate….A LOT!  He will then be monitored over the years to make sure he remains in remission.

If cancer still remains we are not sure what path we take and of course that will be discussed with Dr. Park and her team.

Life is like walking on eggshells right now.  Not knowing how to react/respond.  We cannot really book any family vacations until we know what we will be doing.  Everything is basically planned week by week.

Many of you ask “How is Logan doing?”.  If you have ever had the privilege to meet him you would be amazed by his maturity.  You would never guess he has/had cancer.  He might bring it up in conversation and then proceed to have a very intelligent conversion about his battle with you.  Then he may go down the road of discussing cool cars or video games:).  He is an amazing young man and an inspiration to all!

Sorry this post has gone in many different directions, that is where my mind is these days….not knowing what tomorrow holds.

#loganstrong

Great Weekend!

IMG_3605 (002) IMG_3820

Logan and family had a great weekend!  The picture above is from the LoganFest 5k run/walk.  THANK YOU TO ALL WHO PARTICIPATED!  A special thanks to the Kalles Jr. High staff who has been amazing throughout our fight.  After LoganFest we enjoyed a Mother’s Day breakfast and then spent most the afternoon relaxing.

On Saturday Logan and a great friend went and looked at exotic cars.  I sent Logan with $20 to make a down payment on his favorite Lamborghini or Ferrari.  In between Logan spent time with friends so by last night he was sore and exhausted.

Mom and Logan are up at the hospital today for a quick check-up then Logan will be in school the rest of the week.

Thank you all for the continued thoughts and prayers!

#loganstrong