Our family wants to send a personal THANK YOU to everyone who has reached out, attended celebration, and/or prayed for us.
This has been a very difficult past 2 weeks. We understand life will never be the same. We also understand that life does continue and every day we ALL live #loganstrong together.
The only way we all get stronger is each other. We continue to share stories of how Logan touched our lives.
At Logan’s celebration I challenged everyone to live your lives LOGANSTRONG.
3 simple things:
Inspire someone every day
Challenge yourself to live life to the fullest
And lastly and most importantly flash that Loganstrong smile. It will definitely make someone’s day and your day better.
signing off the blog…….
Come celebrate Logan James Lewis
When: Saturday, March 18th 2017
Where: Kalles Jr High-501 7th Ave SE, Puyallup, WA 98372
Time: 2:00pm (doors open at 1:30pm)
Dress attire: Celebrate Logan’s life by wearing colors that represent courage, strength, & inspiration
Details: Celebration starts promptly at 2pm then gather after at Kalles to share stories and celebrate Logan
Recently our family has been asked where to donate. To donate, please use our gofundme-
Come celebrate Logan’s amazing time with us at Kalles Jr High School in Puyallup on Saturday, March 18th. More details will come as we get a time.
Today is VERY hard. Every breath, every minute is hard. The outpouring from our community touches us so deeply. Thank you all.
We are all
Logan James Lewis
1/19/02 – 3/7/17
We all are forever #LOGANSTRONG
I am currently sitting right next to Logan as I type. His breathing is shallow but he is resting comfortably, pain free. I just wanted to send out a quick thank you to everyone. Family, friends, and everyone who is praying for our family.
Our family sees every comment and they help us get to the next minute. This is the worst feeling….especially the helplessness. There are constant tears being shed.
Our goal is to try to get Logan home to be be surrounded by family. We should find out more today if this can be accomplished.
We all have amazing memories of Logan. He is an inspiration to so many.
Thank you all for respecting our privacy through this difficult time. We definitely feel the love!
After meeting with Dr. Pinto today, it is very clear that the best thing for Logan is not to move forward with the antibody treatment. Both Dr. Pinto and Dr. Park believe it would do more harm than good. This decisions was based on many reasons, but the primary reason is the fact that this antibody finds tumors and then attacks as a pack. If that happens with the tumors on his lungs, then Logan will most likely end up in ICU with a breathing tube. The team does not want his final days to be like that, and neither do Jason & Kelly.
The plan is to remain in the hospital for a few more days to stablize Logan’s pain. As soon as the pain is managed, Logan will go home to be with family and friends. Logan’s medical team is in full support of this plan. Currently, with his swollen liver – which will continue to be swollen – Logan is experiencing high levels of pain and cannot move. We are hoping with pain meds we will eventually get him to a place of comfort.
Obviously, this is difficult news for Logan, Jason, Kelly, and Peyton, as well as the rest of the family. Please keep everyone in your prayers. We love the prayers and support everyone has shown during this difficult journey.
Jason has asked me to post on this blog for him. Yesterday, they met with the doctors; as suspected, the cancer has spread and is now in Logan’s bone marrow, as well as his liver and a possible spot on his lung. They are meeting with doctors againt today to discuss the next steps. Jason and Kelly have asked for some privacy during this time, as they try to deal with everything in front of them. Feel free to post comments, thoughts, prayers, etc., but please refrain from texts and phone calls.
Kelly’s parents are flying in from New York today and will be here as long as needed. It will be great to have them here!
Logan remains in the hospital, as the doctors try to manage his pain and nausea. Logan is comfortable and getting some rest.
As always, continued prayers are appreciated.
This morning started with a call from Seattle Children’s letting us know they needed to re-schedule Logan’s scans to next week because the special radioactive dye they inject into him was delayed in transport due to an ice storm. Kelly and Logan decided to go to the scheduled meeting with Doctor Park anyway to discuss his symptoms. Upon meeting with Dr Park they were able to have the dye sent via FedEx and have the scans done this Friday.
The visit with Dr Park was to go over symptoms as well as talk about options/new trials. We had the possibility of 3 trials. As the meeting continued Logan’s blood results came in and we found out his platelets, very unexpectedly, have plummeted making him ineligible for 2 of the 3. The low platelet count is also an indication the cancer is spreading quicker in his bone marrow.
The conversation then moved to we need to do something fast. So Logan will be admitted Monday to do the same antibody & chemo treatment he was doing toward the end of last year. The goal of this treatment is to hopefully slow growth.
Dr Park also started the conversation with us to look at gradually introducing hospice.
Prayers much appreciated.
Logan will have all of his scans as well as bone marrow aspiration both Wednesday & Thursday. We have a meeting with Dr. Park on Wednesday to discuss the possibility of next steps. We will discuss any new trials if available as well as possibility of doing the antibody treatment again.
We are anticipating news that the cancer has spread but are hoping at a minimum.
Logan is finally over his 2 viruses and is actually getting some strength back. His tailbone and legs continue to bug him and give him pain. That is being controlled by Advil or Motrin. He has his good days and bad (as do we). Right now we celebrate the little things. He spent the weekend at a good friends playing Xbox, staying up late…just being a teenage boy.