Cancer still present…..

Unfortunately there is still signs of Neuroblastoma on Logan’s hip.  Of course we were hoping/praying for remission.  That will come in time.  Right now we are discussing next steps with Dr. Park.  As expected Logan continues to amaze with his maturity in discussion in next steps.  Glass 1/2 full…..there are other option/trials.  Before we go forward on anything they want Logan’s body to recover a little longer as his platelets remain low as his body is still recovering from the immunotherapy.

#loganstrong

The long wait…..

Logan will be finishing up his testing at about 1pm PST today.  We are scheduled to get his results around 3pm PST.  I hope to update his blog soon there after……This will be a VERY long day.

THANK YOU ALL SO MUCH FOR THE CONTINUED THOUGHTS AND PRAYERS!

#LOGANSTRONG

The week before the week…..

Next Monday thru Wednesday Logan will be completing all of his scans yet again to see if the experimental immunotherapy got rid of the remaining cancer.  There will be a meeting at 3 pm on Wednesday to discuss results and next steps.

If no cancer….we celebrate….A LOT!  He will then be monitored over the years to make sure he remains in remission.

If cancer still remains we are not sure what path we take and of course that will be discussed with Dr. Park and her team.

Life is like walking on eggshells right now.  Not knowing how to react/respond.  We cannot really book any family vacations until we know what we will be doing.  Everything is basically planned week by week.

Many of you ask “How is Logan doing?”.  If you have ever had the privilege to meet him you would be amazed by his maturity.  You would never guess he has/had cancer.  He might bring it up in conversation and then proceed to have a very intelligent conversion about his battle with you.  Then he may go down the road of discussing cool cars or video games:).  He is an amazing young man and an inspiration to all!

Sorry this post has gone in many different directions, that is where my mind is these days….not knowing what tomorrow holds.

#loganstrong

Great Weekend!

IMG_3605 (002) IMG_3820

Logan and family had a great weekend!  The picture above is from the LoganFest 5k run/walk.  THANK YOU TO ALL WHO PARTICIPATED!  A special thanks to the Kalles Jr. High staff who has been amazing throughout our fight.  After LoganFest we enjoyed a Mother’s Day breakfast and then spent most the afternoon relaxing.

On Saturday Logan and a great friend went and looked at exotic cars.  I sent Logan with $20 to make a down payment on his favorite Lamborghini or Ferrari.  In between Logan spent time with friends so by last night he was sore and exhausted.

Mom and Logan are up at the hospital today for a quick check-up then Logan will be in school the rest of the week.

Thank you all for the continued thoughts and prayers!

#loganstrong

You’re New Xbox Champion is……

Logan is doing great!  He is starting to get energy back.  Logan & Mom will be making the trip north to the hospital tomorrow to do some blood work and check his ANC counts.  We are expecting them to be at or near zero…but as many of you know that follow Logan’s fight he tends to surprise everyone:).  Since his counts are probably low he has not been attending school but instead getting A LOT of Xbox time…..A LOT!  He has expressed interest in becoming a game designer someday so technically all this gaming he is doing currently is research.

Results from his T-cell should be coming in the week before Memorial Day weekend.  Kelly’s parents will be making the trip out from upstate New York to spend that week with us.  A friend from high school is graciously letting us use his home on the Pacific Ocean so we will escape there for the week.

Thank you as always for the continued thoughts and prayers.

#loganstrong

Flu Like Symptoms……

Two days post T-cell infusion Logan is feeling pretty yucky.  His temperature hovered around 100 degrees last night prompting mom/Logan to check about every 30 minutes.  Good news is this morning he woke up to a normal temperature.  At this mornings check-up in Seattle Dr. Park said all symptoms are normal.  He does however need hydrate a little better.  Logan’s does still sometimes have an appetite.  He did want to join me for lunch at the Olive Garden today (one of his favorite places) but had to cancel last minute due to not feeling so well.  If he continues to stay below 100.4 body temperature Logan & Mom will have a four day rest from driving to Seattle everyday.

Hope to see/meet many of you at the LoganFest Run/Walk/Drive (in my case;)) on Mother’s Day.  Be sure to register here:

LoganFest Run/Walk

#loganstrong

Chemo complete….feeling ok.

Logan has completed his four day chemo treatment.  As usual he did amazing and stayed positive through it all.  Yesterday afternoon he was a little nauseated but other than that he’s been feeling good.  Today mom & Logan are up for a quick blood draw and meeting with Dr. Park.  Tomorrow, all day, will be spent transfusing his reprogrammed T-cells back into him.

Dare I say I hope he never has to have chemo again!  I hope his hair grows back even thicker than it ever has before.  I hope his cancer will be gone forever.  I hope someday he get’s married to the love of his life.

#loganstrong!

Here we go again…..

Life was starting to get back to normalcy….somewhat.  Tomorrow Logan will be starting yet another round of chemo as he continues to battle and inspire.  He will get four doses.  One each day Thursday through Saturday.  Saturday & Sunday will be inpatient.  On Tuesday he will then receive his “re-programmed” T-cells that hopefully will extinguish what little remaining cancer is left.

Logan will be the first child to receive the highest dose approved recently by the FDA.  He will have 1.5 million of his T-cells transfused back into him.  There was another patient who recently had 1 million T-cells transfused but unfortunately the experiment did not work for that kid.  This patient was under different circumstances than Logan though as they still had cancer everywhere in their body.  Unfortunately the last scan showed that this child’s Neuroblastoma actually increased.

The family spent most of Spring Break down in Tucson with Grandma Kathy (my mom), Grandpa David (my step-dad), & Grandpa Gray (our adopted Grandpa;)).  We had a great time visiting and chasing the sun.

LOGANFEST IX 5k Fun Run/Walk at Kalles Jr. High will be on Mother’s Day again this year.

CLICK HERE TO REGISTER!!!!

Thank you all for the continued thoughts & prayers!

#loganstrong

Next Treatment….

Kelly & I met with Dr. Julie Park this morning briefly to discuss options for Logan as well a more detailed description of the immunotherapy treatment he will be doing (she was getting ready to head out to meet VP Joe Biden to discuss cancer research at Fred Hutch/Seattle Children’s:)).  Below is what we know so far….

Logan just has a small lesion on his left hip that’s visible.  To quote Dr. Park, “This is truly the best results to MIBG treatment we have ever seen!”.  So this is obviously GREAT news.  Yes remission would of been the best news but Logan’s results are still amazing.

Questions we asked Dr. Park:

Why not just radiate that spot? Why not do the lead room procedure again?

More than likely that spot is immune to radiation because it has already received such high doses and odds are it will resist more radiation.

Why not remove the portion of the hip bone where the lesion is present?

The type of cancer Logan has, Neuroblastoma, hides very well so removing that portion of the bone will not necessarily get rid of the cancer.

So next will be the T-cell immunotherapy.  Logan will start the Thursday April 7th.  He will get outpatient chemo both that Thursday as well as Friday the 8th.  He will then be admitted Saturday the 9th – Sunday the 10th to get inpatient chemo.  The purpose of the chemo is to wipe out/kill cells in his body to make room for the T-cells.  Monday the 11th will be a normal clinic visit and then Tuesday, April 12th is when he will get the re-programmed T-cells infused.  Over the next 2 weeks after that he will be at home (a couple of clinic visits in between) and be closely watch for fevers.  His ANC counts will drop and are expected to come back up the week of April 25th.  He will lose his hair again because of this chemo.  They will look at re-staging him the week of May 23rd to see if the cancer is gone.

Thank you for the continued thoughts and prayers….

#loganstrong