Our family wants to send a personal THANK YOU to everyone who has reached out, attended celebration, and/or prayed for us.
This has been a very difficult past 2 weeks. We understand life will never be the same. We also understand that life does continue and every day we ALL live #loganstrong together.
The only way we all get stronger is each other. We continue to share stories of how Logan touched our lives.
At Logan’s celebration I challenged everyone to live your lives LOGANSTRONG.
3 simple things:
Inspire someone every day
Challenge yourself to live life to the fullest
And lastly and most importantly flash that Loganstrong smile. It will definitely make someone’s day and your day better.
signing off the blog…….
Come celebrate Logan James Lewis
When: Saturday, March 18th 2017
Where: Kalles Jr High-501 7th Ave SE, Puyallup, WA 98372
Time: 2:00pm (doors open at 1:30pm)
Dress attire: Celebrate Logan’s life by wearing colors that represent courage, strength, & inspiration
Details: Celebration starts promptly at 2pm then gather after at Kalles to share stories and celebrate Logan
Come celebrate Logan’s amazing time with us at Kalles Jr High School in Puyallup on Saturday, March 18th. More details will come as we get a time.
Today is VERY hard. Every breath, every minute is hard. The outpouring from our community touches us so deeply. Thank you all.
We are all
Logan James Lewis
1/19/02 – 3/7/17
We all are forever #LOGANSTRONG
I am currently sitting right next to Logan as I type. His breathing is shallow but he is resting comfortably, pain free. I just wanted to send out a quick thank you to everyone. Family, friends, and everyone who is praying for our family.
Our family sees every comment and they help us get to the next minute. This is the worst feeling….especially the helplessness. There are constant tears being shed.
Our goal is to try to get Logan home to be be surrounded by family. We should find out more today if this can be accomplished.
We all have amazing memories of Logan. He is an inspiration to so many.
Thank you all for respecting our privacy through this difficult time. We definitely feel the love!
This morning started with a call from Seattle Children’s letting us know they needed to re-schedule Logan’s scans to next week because the special radioactive dye they inject into him was delayed in transport due to an ice storm. Kelly and Logan decided to go to the scheduled meeting with Doctor Park anyway to discuss his symptoms. Upon meeting with Dr Park they were able to have the dye sent via FedEx and have the scans done this Friday.
The visit with Dr Park was to go over symptoms as well as talk about options/new trials. We had the possibility of 3 trials. As the meeting continued Logan’s blood results came in and we found out his platelets, very unexpectedly, have plummeted making him ineligible for 2 of the 3. The low platelet count is also an indication the cancer is spreading quicker in his bone marrow.
The conversation then moved to we need to do something fast. So Logan will be admitted Monday to do the same antibody & chemo treatment he was doing toward the end of last year. The goal of this treatment is to hopefully slow growth.
Dr Park also started the conversation with us to look at gradually introducing hospice.
Prayers much appreciated.
Logan will have all of his scans as well as bone marrow aspiration both Wednesday & Thursday. We have a meeting with Dr. Park on Wednesday to discuss the possibility of next steps. We will discuss any new trials if available as well as possibility of doing the antibody treatment again.
We are anticipating news that the cancer has spread but are hoping at a minimum.
Logan is finally over his 2 viruses and is actually getting some strength back. His tailbone and legs continue to bug him and give him pain. That is being controlled by Advil or Motrin. He has his good days and bad (as do we). Right now we celebrate the little things. He spent the weekend at a good friends playing Xbox, staying up late…just being a teenage boy.
Logan had his check-up with his doctor yesterday. He has not been feeling very well. Fevers, very tired, and no appetite. The nurse did a nasal swab and it tested positive for two different viruses. He has a cold/chest virus as well as a flu strain. Unfortunately both viruses just need to “run their course” and are not treatable with antibiotics. The positive is he is at the tail end if the sickness.
His leg is going better. Still sore but no longer requires crutches or pain medication.
At this time we will continue to constantly communicate with his team of doctors and the plan is to re-scan the first week of March and reevaluate then.
This past weekend we took an extended long weekend and spent time as a family in one of our favorite places Seabrook, WA. It was very relaxing and great weather. Logan even got in a little driving time on the beach! We played board games, went on short walks, drove on the beach, went swimming among somethings. It was a much very needed getaway.
Loganfest X is almost here! Click on link to find out more! Thank you Kalles family!
Unfortunately Logan is starting to experience more and more pain in his left hip/leg. So much so that he is now requesting pain medication. As many of you know the strength of this teen….he must be hurting. He can no longer put full weight on his leg and is relying on crutches to get around.
We will meet with his team tomorrow to see about what can be done. We are assuming they will have an x-ray of the site to see if he possibly may have broken his femur again.
In our last meeting with his team we discussed doing “targeted” radiation on the tumor in his hip/leg to slow down the growth. Everyone decided based on how Logan was feeling (great) that we do that upon his return from visiting family in upstate NY.
With the pain now coming on so aggressively we had to cancel the trip back east as we do not know as of right now what we are even doing day to day.
Logan continues to stay positive (even though the pain meds make him a little grumpy;)). Right now his days are filled with X-box, friends, & family (in that order).
Thought and LOTS of prayers appreciated.
Logan has been feeling great. Some occasional pain in his hip and rib area comes and goes but that does not stop him one bit. He has been going to school everyday, hanging with friends….basically going non-stop.
This weekend he is going to the mountains for youth group camp for the weekend. We are then taking a small family getaway to Suncadia. After that Mom and the boys are going to head back east to upstate NY for a week to see Kelly’s family. Busy next couple of weeks!
Current plan is to meet with Logan’s team weekly. Scans are scheduled for first week of March to see if cancer has progressed and if so where.
Pictures above are from his Porsche 918 car experience….he had a blast!