Last night about 9:30 Logan spike a fever of about 103. Protocol is anything over 101 we go to emergency room at Seattle Children’s. Mom and Logan arrived in ER about 10:30. Throughout the night many doctors and nurses worked on stabilizing Logan which included fluids, blood transfusion, and other medications. Logan and mom finally got a room on the oncology floor about 5 this morning. Both are exhausted and tired.
Good news is Logan is feeling better. I just checked in with Kelly and Logan ate a really good breakfast and has actually requested more bacon and a cinnamon roll.
Concerning news is fever still a little higher than it should be and blood pressure a little lower than it should be.
Plan currently is he will remain in patient until both are corrected…so more than likely the weekend.
For him to get a fever, blood transfusions, & admitted is common after the chemo he has received. During our first run at beating cancer we always planned on hospital visits a couple days after chemo.
Thank you all for your continued thoughts and prayers…
Thank you Ms. Kavanaugh and Korum’s Puyallup Nissan for letting us take Logan to appointments the next couple days in this 2016 370Z!!! He loves his sports cars and when I came home with this car his grin was ear to ear!
Logan had a pretty good day today as he did not have to make the hour plus journey to Seattle. He continues to struggle to eat but is trying really hard. Aunt Traci brought him a Slurpee and pizza bites per his request and he actually did pretty good eating. His leg continues to be a big issue as he cannot put any weight on it.
One day at a time…tomorrow he just needs blood work locally to determine if his counts are down. If counts are down he is susceptible to infection and high fevers. This is common with chemo for count to drop.
1. Trip to Seattle to get hydrated. complete.
2. Eat pasta for lunch (eat anything:)). complete.
3. Have one of his best friends, Chloe, hang with him all day. complete.
Today Logan was a little sick this morning but rebounded quickly once hydrated. Currently Chloe and him are playing Xbox and just laughing.
Logan and Mom are home. She doctors think Logan possibly pulled a muscle since he has not been using his leg that much due to surgery/tumor. They will be be starting him on therapy to exercise the leg via stretching and swimming activity. Mom also reported that he is feeling much better and even ordered a double bacon breakfast sandwich from Starbucks!
The concern under Logan’s rib is just muscle/bone as he has lost so much weight. If he continues to lose weight they will be placing the feeding tube next week.
On that note as Logan and mom were leaving the hospital Logan’s left leg/hip gave out on him and he cannot put any weight on it. They are back in clinic meeting with the team of doctors.
After a great day yesterday it all changed this morning….Logan felt awful. He really struggled getting to the car to make the daily trip north to Seattle Children’s Hospital. After being sick we were able to get him some nausea medicine and thankfully he kept it down. When I checked in with Kelly on their 1.5 hour commute he was sleeping.
Today they meet with Dr. Julie Park to discuss last weeks treatment as well as go over his daily check on blood work. Yesterday Logan’s blood work actually started looking better. They have been monitoring things real close because they are concerned his kidney’s and liver are working to hard and stressed.
Logan also has been concerned about his lower left rib area. I tried to feel it yesterday and he was very protective of the area. Not sure if it’s cancer/tumor related. Kelly is going to have Dr. Park examine today which I am sure will possibly lead to scans.
Seeing Logan in so much pain this morning was heartbreaking…….helpless feeling.
Yesterday our family experienced more love and support. The car wash was an amazing success. We were there most the day and Logan was even able to make an appearance after his treatment at the hospital. Thank you for all the support from friends, family, strangers, & local businesses. I heard over $3k was raised! AMAZING!
We received lots of kind words/support and many hugs yesterday.
Taylor Swift Meet & Greet!
She loves the bracelet Peyton gave her…
Tonight as I write this Logan is asleep and actually feeling pretty good. Today was all about hydration. Once they gave him fluids he felt/looked a lot better.
Tonight I reflect on life and “full circle”. Today with social media it amazes me how many of my high school friends have reached out to me. I love it. I currently coach the JV boys soccer team at Roger’s High School in Puyallup (where I graduated in 1991). I have had former players that we have coached reach out to me. My HS coach has reached out to me. People that I don’t even know but have heard Logan’s strength/story have reached out to me. The support that I have received from my work colleagues/friends at Comcast is amazing. Former employees from my previous job when we battled this the first time have reached out….OK this is getting a little long winded but Kelly & I are so grateful for the support. I won’t talk for Kelly but…..she has been overwhelmed with the support she/we have received. She comments daily how she wants to respond to everyone.
So tonight, tomorrow, yesterday, forever we say thank you. We will do this together.
The chemo is definitely taking it’s toll on Logan. He is very weak and sick. We are trying to stay ahead of the nausea with the medications but they are in pill form and it’s makes him sick to take them.
So far he has not had a fever. If one creeps up over 101 degrees we need to take him to Children’s ER. Food is another issue. Obviously not feeling well he has also lost his appetite. Kelly met with a nutritionist and they said if he loses more weight they will look at placing the NG tube through his nose and into his stomach. The tube would go to a backpack with a liquid formula.
Today, Logan’s Papa & Nana head back to New York. It has been a blessing having them here. Coming home to great meals (weight gain;)), beds made, laundry done, porch stained…… Thank you Larry & Bonnie for coming out. It meant the world to us. When Logan feels better we will plan a trip out there…hopefully to see Griffey get inducted into the baseball HOF!
Thank you everyone for your continued thoughts and prayers.