#Loganstrong

Hello all. Logan is doing well. We finished our last shot of the 14 days today, Logan has been a trooper, but none of us look forward to that every morning. We are now in our 2nd day of the pills, he takes 2 in the morning and then 2 at night, for 14 days. The first couple of days were difficult, a 6 year old doesn’t really like the feeling of swallowing a pill. Today… Logan was amazing. He got up, took his pill, that was it. No yelling or gagging. Jason came down and asked Logan if he was ready to take his pill and Logan gave him the cutest smile, as if he did something really special….. and he did.

Logan also had his teacher, Mrs. Pesature, come over to do school. She comes over 2 x a week ( Logan’s schedule permitting ) and she does the same work with Logan that she is doing in her class. We are in hopes of Logan keeping up, she will continue teaching Logan through out the summer. So far he is doing really well, he seems to learn quickly. Thank you Toby, Jason and I are very grateful for your commitment to Logan and his learning. Logan lights up the days you come over. He really misses his teacher and kindergarten class.

Logan is heading to NW Trek tomorrow with his friend, Chloe. We are in hopes of seeing babies while we are on the tram. Should be alot of fun. And fun is all we will be doing…… we are free ( no hospital ) until Monday May 5th. Yeah!

Hello…Logan & Dad here. Logan is here by my side telling me what to write today. Logan said it is hard swallowing down the new pills he has to take, 4 per day. He cannot chew them they have to down whole. Logan wanted to tell his older brother Josh hello. He also wanted to tell Josh he loves him. Logan is done talking now because cartoons came back on.
He has been doing pretty well the last two days. A little tummy pain here and there but no getting sick.

Logan is starting to come around. He was pretty much up all night Friday night w/ pain & nausea. Yesterday he was feeling a little better but still had bouts of pain & nausea. Last night just up once w/ nausea…and this morning is feeling good. He is joking around and playing w/ Peyton. This afternoon he is going to go over to cousin Sydney’s to play. This next week Logan just has two appointments. Monday he has blood draw and meeting w/ doctor. On Thursday just blood work. We get to stop shots on Tuesday and then he starts taking 4 pills a day (acid treatment). The medication is basically a very strong acne medication. Logan will have very dry skin, nose, & eyes. He will also be extra sensitive to sun so anytime he is outside we will need to cake on the 50 SPF. This medicine is known to also seek out and kill and remaining tumor cells along w/ the experimental. Anyone that wants to read about the study Logan is in you just need to Google Phase III Randomized Study of Chimeric Antibody 14.18. I tried to post the PDF that I have but have been unsuccessful.

4 down 16 to go! Week 1 of 5 complete! Logan is in a lot of pain but hour by hour he is feeling better. He has had a fever all day until just recently…he finally beat it. He also bit his cheek and that has caused him a lot of pain. The goal is to go home tomorrow if Logan feels well. No fevers is the goal. Today he spoke w/ Peyton via speaker phone. It was awesome. Peyton was grunting into the phone every time he heard Logan’s voice. Logan cannot wait to see him. We have tried to keep Peyton away because of the visible pain Logan is in as well as Peyton these days cannot sit still;) Peyton has been staying with Aunt Traci when not at home…it is so nice to have an amazing family.
Well we went into this experimental ready for about anything….the nurses did a great job controlling Logan’s pain. We have had the pleasure to work w/ one of the best nurses the whole week…Thank You Amber for making our week better. Your smile & sense of humor have really helped us.
This is Logan and Dad signing out from room T-3271…until next time….tomorrow:)

3 down 17 to go….Today was a rough day. They started antibody at 9am today and by 11am Logan had stronger belly pains than days past. He also got sick and was throwing up so hard his NG feeding tube came out of his mouth. We had to pin him down and pull it out completely through his nose. It did not cause him pain but it is real uncomfortable because of the gag reflex. We then of course had to put in a new one. Logan did awesome. He did everything he was supposed to do….the nurse puts it through his nostril and of course the hard part is getting it to bend and make its way down his throat. Once it gets to his throat he swallows to help it go down faster. They the give him a chest x-ray to make sure it is in his tummy vs. a lung. The nurses were very impressed how Logan did. Once we got the right amount of morphine balance Logan seemed to do better. Tonight I am taking a night at home to catch up on sleep and aunt Kristi is staying w. him in which Logan was thrilled. She brought a Sponge Bob movie with her and Logan was pumped. If all goes as planned…as is the case so far….we should get to go home sometime on Friday. Dr. Park thinks Logan should be back to his normal self by Sunday.

2 treatments down and 18 to go. A better day for Logan than yesterday. Today we knew what better to expect and treated him before he showed the symptoms. Last night was a long night…Logan had a low blood pressure as well as a fever so that in turn required a lot of visits from the charge nurse and the night doctor. We watched movies from 3am to 4:30am. He powered through everything as usual and was up dancing this morning for the nurses. Currently as I type this he is watching a movie and being slowly weaned off the morphine. We are going to go for a walk shortly to get some exercise…for both of us.

Day 1 complete….19 more to go (they only give him the antibody 4 days during the week x the 5 visits). Logan did very well. They started the antibody at 11am and by about 1pm he was in extreme pain. A lot of chest and abdomen pain. They started him at a high dose of morphine….they started him at the highest we ever got for stem cell. They also give him more doses throughout to help even more. Basically they snowballed him w/ morphine….it worked. He fell asleep through almost the rest of the medicine dose. We finished at about 5pm. As soon as the nurse shut it off he almost instantly felt better (a half hour before she shut it off Logan sat up real quick….got dizzy…and yep lost it all over himself and his bed). So tomorrow they will load him just before the antibody and hopefully he will sleep through most of it again. It was so hard for Kelly and I to hear Logan scream in pain….Peyton even looked over at Logan worried. For every scream it is a bad cancer cell that was hiding that just died! I cannot say it enough Logan is amazing and a true superhero.

We are all packed and ready for our 1 week get-a-way to the four seasons in Seattle…a.k.a. Children’s hospital. I have been talking w/ Logan about it today and he seems to being doing pretty well with it all. We told him this is a different type of medicine that he has never had. This medicine will give him owies in his tummy and back. He said like cramps. I said yes cramps that hurt a little but the doctors will give you medicine to make you feel better. This morning was day 3 of 14 of morning shots…..Logan laughed when I gave him the shot. He is amazing. Please continue to send your thoughts and prayers our way…for a pain free quick week…..THANK YOU!