Happy Saturday! Logan’s Nana & Papa made it to Puyallup safe….Logan was wired w/ excitement all day until they arrived. As I type this Logan is showing Papa how good he is at dodge ball on the Wii. Logan has already beaten everyone in bowling. It is nice to relax and just hang out w/ family. On Monday Logan has his normal 30 second of radiation and then has to go over to Children’s for a check-up. Also on Monday he has to get his NG tube replaced because Mom was cutting some tape off of it and accidentally nicked it and cut a small hole into it (sound familiar Jeff). Have a great weekend everyone!
As you can see by the picture Logan (and family) are doing great. Logan’s shoulder is feeling a lot better. One week down w/ radiation and three to go! Tomorrow Kelly’s parent’s arrive from New York. It will be great having them here to help out. I hope everyone has a great weekend and as always thank you so much for your thoughts and prayers.
Logan is doing a lot better. Monday & Tuesday were a little rough. He was sick to his tummy a couple times. The doctor said that is common in kids when there is such a painful break in a bone. We have been combating the break w/ pain medicine and that seemed to work. Today he actually was in the yard golfing…mostly one handed. Boys will be boys.
Radiation is going smooth 3 days in. Logan has it down now what to do where he doesn’t even have mom help. He goes in w/ the nurse and about two minutes later comes out w/ his amazing smile.
His Nana & Papa are coming from New York on Saturday to stay for a couple weeks. Logan is so excited.
Broken collar bone is the diagnosis…..great all we need. Today they felt an x-ray was needed and sure enough Logan broke his left collar bone. The good news is they do not think it will be to painful. It will take about 4-6 weeks to heal to move normal and about a year to be 100% healed. All we can do is put it in a sling to help w/ some pain. The most pain at this time is getting dressed, getting into the car etc. Also if this would of happened during chemo they would of have to delay the process. It will not affect anything during the radiation.
Logan’s radiation went great. It takes just 30 seconds to do the procedure. He also did very well getting the tattoo marks. Was a little scared of the needles, but went quick and he was very brave!
Good Monday morning to all. Today we start the radiation phase. Today will be a little longer than most because Logan has to get “marked” w/ his tattoos. After radiation we have to go over to Children’s Hospital for blood work and a check-up. We also may be stopping by the ER……yesterday, while swinging on his swing in the backyard, Logan was attempting to jump off and fell very hard on his shoulder. We were thinking of taking him to the Hospital yesterday but it got a little better as the day went on. He still does not have much movement w/ it this morning. I think it is a deep bruise but we want to be on the safe side. Kelly happened to be recording Logan on the swing at the time. I looked at the video and luckily his shoulder/arm did not bend in any abnormal ways. He did however land on his shoulder pretty hard.
Logan was a perfect patient today. He had to lay very still while the doctors made sure all the measurements of where the radiation will go were perfect. It took them almost two hours. When they returned Logan to Kelly in the waiting room the nurse was gleaming on how good everything went because Logan was such a good listener. His tummy has Sharpie marks all over…his belly looks like a target of red & black marks. On Monday we go up for first session of twenty. Basically everyday in March w/ weekends off. The only immediate side effects they are expecting are a little redness in the area of treatment, maybe a little nausea but very little…other than that they think Logan should do very well.
Logan is completely off his IV foods and now only gets the food through his NG tube and of course whatever he wants to eat. He is also down to taking about 7 medications daily now.
I mentioned yesterday about the local radio station raising money for Seattle Children’s Hospital in yesterday’s blog. In two days they raised over $900,000 dollars! It was moving to listen to a lot of the stories they shared on the program. I think I cried probably 10 times yesterday. I told Kelly last night that I never want to be that dad on that program telling everyone how great my son was and the impact he made on everyone. I am going to be the dad that is there w/ my son supporting others w/ him as they fight cancer. Logan will be the survivor story! Thank you to those that donated in Logan’s name.
Well our trial run did not happen….UW scheduled the wrong day and forgot to notify us. Yes we drove the one hour plus (to get there) to be told to come back tomorrow. Frustration….yes, very but our hands are tied.
As always I try to spin things in a positive light. I got to stop in at Children’s and see Ben Towne. He was playing Matchbox cars on his bed and looking great. I also got to thank the staff at radio station 106.1 for doing an awesome fundraiser for Seattle Children’s Hospital. They mentioned Logan’s website on the air as well. They also interviewed Ben’s mom live on air and she represented Ben & Neuroblastoma awesome! Great job Carin!
Today Logan goes up to UW Hospital for a “trial run” for his radiation. The team wants to make sure areas that need the radiation are covered (measurements are all correct). He will go through tests as well.
Logan continues to do great. It frustrates him he cannot go to school (he can only beat mom so many times at dodge ball on the Wii). His feeds have surpassed the highest they have ever been. He previously was at 60ml an hour & today he is at 65! Since he started fighting this 7 months ago he has gained 5 pounds. Our heavyweight is weighing in at 45 pounds! He dropped during some bad times to 38 but rebounded well.
Logan’s Papa & Nana are coming out for 2 weeks from New York starting March 8th to help out with the daily trips to Seattle and the little rug rat named Peyton;) I am not sure who is more excited Logan or Papa…..Logan is already talking about going golfing w/ Papa.
Many of you also follow Ben Townes progress…..congratulations on his ANC counts showing up! He has turned the corned of recovery and now start to feel better every day. Great job Ben & Family!
Everyone that has kids that reads this know what I am talking about when I say how awesome it is when your son/daughter snuggle with you in bed. Last night Logan, Kelly, & I snuggled in our bed and just laid there and talked. We told Logan how proud we are of him and how brave everyone thinks he is. I spoke w/ Logan about whet is next…..the radiation. We just talked and he slowly fell asleep. Kelly and I just stared at him wondering, praying, scared….one of the many emotions we go through everyday, every hour, every minute. Logan is our life….he will beat this.
His appointments went great Monday. UW Hospital in Seattle did a mold w/ Logan so every time they do radiation he will be in the exact position. They also marked him up w/ Sharpie where they will be putting the permanent black spots. We talked about those black spots being put there with needles…that worried Logan a little. I told him he is getting some very small tattoos and he thought that would be cool.
Currently as I type this I look over at Logan sitting at the table eating a piece of sausage & pepperoni pizza, blueberries, and a glass of apple juice. It may seem like a weird combination to some but to us it is awesome to see him eating. Thank you all for your continued thoughts and prayers.
Logan had a great weekend. He played outside all weekend w/ his neighbor Chloe. Tomorrow he goes up to UW Hospital in Seattle to get “marked”. This is where they will place a small black mark (tattoo) on him so they know exactly where to do the radiation every time. He then has a check-up over at Seattle Children’s to see how he is doing. We are hoping they take him off his IV foods because he is tolerating his NG tube foods so well.
I had a chance to attend a carnival at Logan’s school Friday night (Logan Day). Unfortunately Logan could not go because the risk of him being exposed to a virus. The carnival Fruitland had was amazing. They had a booth set-up to raise money for Logan…it was great. A father came up and told me about his son getting some money from a relative and with out thought he told his dad he wanted to give it to Logan. It is another life of many that Logan has touched. A third grade class at Fruitland also made Logan some hearts. Each student made their own and wrote a personal message to Logan. We read them to him this weekend and he loved it. He misses all his friends at school a lot! Thank You Fruitland Rams for your kind thoughts and prayers!