Logan had a great day today….after sleeping for about 14 hours he awoke ready to play. Yesterday he helped out in the yard, played w/ his neighbor Chloe as well as Cousin Sydney. He was so tired when he finally slowed down.Today while dad was at work and mom & Peyton were at Peyton’s 6 month check-up he played at Cousin Sydney’s. He then came home and went and rode bikes at the park w/ Chloe. Just before Logan was diagnosed he learned to ride a bike. He has not ridden much since, today though it was like he never stopped. He was riding around and as he says “going super fast”.
He is starting to show some interest in food…although he has not eaten anything yet he is interested. Tomorrow he has an appointment w/ the nutritionist. We hope he will be taken off the IV food and just have the food through his NG tube. We should also get an idea of what next week looks like for another round of appointments to see if his amazing little body shows any signs of the tumor/cancer. Continue to pray for our amazing son to be cancer free….THANK YOU!
Happy Sunday to all, Logan is doing better every day. The weather has been somewhat nice around here so yesterday Logan went on a nice hour plus walk. Today he is going to help dad w/ some overdue chores around the house. We are going to paint the master bath, fix the backdoor that squeaks to much and rake some leafs. Logan is excited to help.
Peyton loves having Logan here. He watches Logan’s every move. Yesterday Logan built a train track around him and when the trains went by we pretended Peyton was the monster. If the trains were not fast enough Peyton would reach out and knock them off the track. Logan was laughing so hard.
It is official; Logan will start his radiation March 3rd. Kelly’s parents are going to come out from New York to help out for a couple of weeks. It will be great having them here. Kelly’s sister Kim flew back last week and she was such a blessing to help out during the last two weeks of the stem cell. Thank You Aunt Kim!
Logan is still opening the many Valentine’s Day cards he received. Thank you to his kindergarten class for all you did. They made him a huge book (3’ x 2’) and each page is a self portrait that each kid did of themselves. Logan loves it. His old School Puyallup Playcare also did some Valentines for him. He is truly loved by a lot of people and we are very grateful for that.
Logan is loving being home…..he is tolerating his feeds better as well as his medicine. That means his tummy is starting to “work” again. Yesterday we met w/ his primary nurse at the hospital to go over the next couple weeks. The will slowly take him off his IV foods at home and just feed him through his NG tube. Next he will go through radiation at UW hospital. That will probably start late February early march and go one for one month straight. He will go up every day Monday through Friday get 10 minutes of radiation and come home. Between now and then we also will go through a series of tests again to see if any signs of tumor remain. In the mean time we will enjoy being a family at home. Logan’s brother, Peyton thinks it is strange in the morning now when he wakes up and daddy and Logan are there…Logan loves it!
LOGAN’S HOME! Just 13 hours shy of being away from home one month Logan came home tonight. It is weird as I sit here on my couch and type this knowing that Logan is upstairs sleeping in his own bed. On the way home he fell asleep….he then awoke for about five minutes when he got home. We laid him on the couch until we got situated. Then I carried him upstairs and laid him in his own bed he woke back up and smiled the most beautiful smile. It is so nice to be a family again.
He has come home on many different medicines….13 to be exact that need to be given to him at different times and different amounts. We also were trained today on home IV care because he still needs the nutrients through his Hickman line. That is all for now since we are all very tired and I am going to go sleep in my own bed…….good night and thank you for your continued thoughts and prayers.
A little set back….Logan’s body is having a little trouble being off the morphine. Everyday they have been slowly decreasing the amount and yesterday they turned it off. The side affects are nausea, diarrhea, & irritability. They also started giving all medicine through NG Tube as well as introduced his food (at a very slow rate) yesterday. His body is just in a little shock and hopefully he will rebound quickly. Aunt Kristi stayed with him last night and they had a long night. This morning when Kelly arrived he brightened up a little because she had a gift box from Nana & Papa as well as a Wii Nerf sport pack from Grandma Nancy. When I called he was playing tennis w/ his new Nerf racquet.
Thank you all for your thoughts and prayers….many of you also follow Ben Towne as well. Please keep him & his family in your thoughts and prayers as well as he starts his stem cell process today.
Hello. So sorry we have not updated the blog. We have received multiple calls and e-mails with concerns about Logan’s treatment…. he is doing great! Unfortunately the internet has been down at the hospital. Thank you for all of your concern, we are thankful for all of the support and well wishes.
Here’s the update….Logan is doing well, we are expecting to be discharged….. if all goes well either Tues or Weds. We have been waiting for Logan to be weaned off of the Morphine. This is a slow process to avoid any withdrawal, he seems to be doing well. Lets see… no fevers, great blood pressure for many days now. We put Logan’s NG tube back in on Thursday to make it easier to give him his medicine and to start his feeds again. Due to the remaining muchisitis (he has been throwing up the remaining muchisitis early in the morning and late at night. He seems to be fine during the day, this is all anticipated). We have not started his feedings as of yet, we hope to start this possibly tomorrow (he did show interest in eating a rice crispy treat this afternoon and had some water, but he has not had anything to eat or had anything going into his stomach for 3 weeks). As the staff has said multiple times, Logan is doing great and well ahead of where most kids are at this time. Logan’s mouth has healed and he has started talking again….. The stem cell team gave us passes for the weekend to leave for 3 hours a day. They wanted to see how Logan handled being outside of the hospital, without the morphine. Sat was an eventful day, as Logan’s brother came to visit. This was Peyton’s first visit in over a week, so Logan was really excited, they did lots of snuggling. We also had the cousins visit, they rode bikes with Logan and had a great time. We went to the Ballard Locks with our 3 hour pass and watched a boat come in, Logan did great, he had a lot of energy and proved he was in great spirits. Today, aunt Kim played Wii with Logan. Logan won at all of the games…. as always. Then our friend Scott came, Logan attempted to teach him how to play Spiderman on the Wii. For our pass we went for a drive and went to the store to get Logan another DS game, as he earned $50.00 for taking his medicine during his stay….well earned! Thank you again for your thoughts and prayers.